This is an AMAZING resource for anyone touched by Chronic Myelogenous Leukemia or CML.
Here’s the dealio (as my daughter always says)…
Chronic Myelogenous Leukemia (CML) is referred to by a variety of names, such as chronic granulocytic, chronic myelocytic, or chronic myeloid leukemia. CML results from a change (mutation) to the DNA of a single marrow cell. The mutation is “acquired” (not present at birth).
CML is one of the more rare forms of leukemia that can go undetected for great amounts of time without acute symptoms. As with most rare cancers (or any disease for that matter), figuring out the best way to manage this can be super tricky.
So here’s where the National CML Society comes in…. they provide a centralized hub of FREE information for this rare form of leukemia. AMAZING, right?! From Ask the CML Experts portal (where you can interact with medical professionals who specialize in CML) TO CML Connection (helps patients and caregivers find & build support at the local level) TO info on the latest treatments & clinical trials, peer matching, providing educational events across the country, the National CML Society helps anyone touched by CML navigate their journey.
The National CML Society can also provide assistance with the application process for a variety of Patient Assistance Programs, particularly those related to CML. They have established contacts that can help expedite the handling of your requests. And they can also help sponsor blood and bone marrow drives.
All I can say is “wow-za-wow-wow“…. and oh how I wish an organization like this existed for each subtype of cancer…. oh how much easier our rhabdomyosarcoma journey would have been. Thank you National CML Society for everything you are doing… you are making a difference in many, many people’s lives.