Tag Archive for sarcoma

Announcing Cancer Survivor’s Scholarship

I’d like to introduce you to yet another new scholarship program for cancer survivors- the first annual Survivors Scholarshipcreated and funded by The Law Offices of Chalik & Chalik.  This $1000 scholarship is open to any cancer survivor attending college or law school this spring.  The award will be paid directly to the college in the student’s name to help with tuition or materials costs.  Additional requirements include:

  • Recipient must be a U.S. citizen or otherwise authorized to work in the United States
  • Recipient has been accepted, and will be or is attending a certified University or Law School in the Spring of 2015
  • Academic achievement as reflected by an undergraduate cumulative minimum 3.0 GPA

 

How to Apply

Complete the Survivors Scholarship online application as well as a short personal essay about how cancer has influenced your choice to pursue a higher education.  Applicants will also be required to provide an official copy of his or her college or high school transcripts.  The deadline is January 12, 2015. (scholarship will applied to the upcoming spring semester).

The scholarship winner will be determined solely by a selection committee based on the written essay and application criteria listed above.

For more information, visit Chalik & Chalik Survivors Scholarship website.

All questions should be directed to media@chaliklaw.com.  For more information, visit Chalik & Chalik Survivors Scholarship website.

Giving Thanks for this FREE Thanksgiving Dinner

 

Fifth Season Financial is looking to donate a Thanksgiving dinner with all the trimmings to three patients diagnosed with an advanced cancer and their families.

Here’s how it works:

Visit Fifth Season Financial.com to fill out the form on the right side of the page.  You can either nominate a patient or they can fill out the form themselves.  Entries must be made on behalf of a person who is:

  • 18 years or older
  • Diagnosed with an advanced cancer
  • A United States citizen or permanent resident

At 11:00 am on November 20, three winners will be selected. Winners will receive a gift certificate in the amount of $250 to be used at a local supermarket or food caterer.  Winners will be contacted directly so they can provide details of where their special dinner should be ordered from and sent to.

#ThankfulForYou #HappyThanksgiving

Hope In A Mouse Kept Us Afloat

 

Science Magazine

 

 

 

 

 

 

 

 

 

 

 

I am truly honored to have been interviewed by Jennifer Couzin-Frankel of Science Magazine for the article she wrote on using animal models to guide patient care as this is where my family’s battle with cancer led us.  You can read Jennifer’s  article “Hope In A Mouse” by clicking here.  Thank you Jennifer for including my perspective in this amazing, well-balanced and informative article.  

 

A little more info on our experience….

When I look back on my family’s war with cancer, I believe that “hope” kept us afloat.  

We tried everything possible to gain control over the cancer that was ravaging my husband’s body, but nothing was working.  We were under the care of top doctors in sarcoma (that is after we fired our first oncologist); we followed the advice of a nutritionist who specialized in working with oncology patients (as a result, my husband Alan had never looked better and his body became strong enough to withstand the massive amounts of toxic therapies he received); we even worked with a spiritual healer (what can I say, we were desperate).

 

Come November 2009, we were left with no options… and no hope.  It was pure luck (and one amazing Uncle) that led us to Champions Oncology.  Champions offered us the ability to implant Alan’s cancer into immunodeficient mice (mice with no immune system); test any drug or treatment regimen in these mice; and if we were lucky enough to find something that killed off Alan’s cancer in the mice, there was a really good chance it would do the same in Alan’s body.

 

Although we knew the odds of success were not in our favor, the ability to test different therapies against Alan’s tumors in mice using the Champions TumorGraft gave us hope. Hope gave us the strength to get out of bed each day and enjoy whatever time our family had left together.

 

Although we did not find a cure for Alan’s cancer or anything to substantially slow down its growth, we know that we tried everything possible to beat this diagnosis.  I sleep at night knowing that we left no stone unturned.

 

My family’s battle with cancer led me to create CancerHawk.  My mission is to connect cancer patients and caregivers to groups and resources they never knew existed or even thought to seek out- groups like Champions Oncology for instance.  Knowledge is hope.  And hope is everything.

 

Read the article Hope In A Mouse” in this week’s Science Magazine and let us know what you think…  Would you want access to an experimental approach to guide your treatment even if it’s not yet 100% proven?  Or would you prefer that researchers keep it locked up until it is?

 

 

 

 

 

got Cancer? meet CancerCare

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Despite the fact that CancerCare is a national organization providing free support services to anyone affected by cancer in the US and Puerto Rico, not everyone knows about them or about the amazing assistance they offer.  Candidly, I wish I had known about them when we were battling my husband’s cancer.

CancerCare literally helps anyone touched by cancer, and I mean A-N-Y-O-N-E -patients, caregivers, survivors, family and even friends.   Services include free individual counseling, free support groups, free resource referrals, free meals, financial assistance and even the ability to connect with leading cancer experts.

 

FREE Counseling Services

CancerCare‘s free counseling is available over the telephone, online or in person. All support groups are led by masters level oncology social workers and allow participants to connect and identify with others in similar situations.

  • In-person groups are held at CancerCare offices in New York City, Long Island, New Jersey and Connecticut. If people don’t live in these areas, CancerCare will help them find face-to-face support groups in their community.
  • Password-protected online support groups can be accessed 24 hours a day, seven days a week.
  • Telephone support groups connect people with others from across the country who share similar concerns. Regularly scheduled, one-hour sessions take place over six weeks.

To learn more about CancerCare‘s support groups or to register for one, visit www.cancercare.org/support_groups or call 800-813-hope (4673).

 

Connect with a Leading Oncology Expert

CancerCare Connect Education Workshops share the latest information from leading oncology experts. Like all of CancerCare’s services, these one-hour workshops are completely free of charge.  Registrants can listen in live over the phone or online as a webcast.  Topics range from latest advances in specific cancer types to understanding the Affordable Care Act to practical advice for caregivers and so much more.

To see the upcoming schedule of workshops, click HERE.  To listen to past workshops, click HERE.

 

Financial Assistance

In addition to the emotional stress and anxiety that a diagnosis of cancer brings, the financial implications can become burdensome.  Co-pays for chemotherapy, RXs, tests and office visits as well as OTC meds add up quickly.  Other cancer-related costs include travel expenses like gas and parking fees at doctor’s offices; paying for childcare coverage during treatments; the list goes on and on.  Some people even have to stop working during their treatment or the treatment of their child.  Out-of-pocket expenses can put people into debt or make it nearly impossible for them to follow or complete their cancer treatment plan.

CancerCare offers financial assistance for cancer-related costs such as:

  • Transportation to and from cancer treatment
  • Home care
  • Child care
  • Pain medications
  • Lymphedema supplies (breast cancer only)

Check the CancerCare website for specific requirements and grants.  Please note:  If CancerCare does not currently have funding to assist your specific situation, their professional oncology social workers will work to refer you to other financial assistance resources. 

Also check out the CancerCare Co-Payment Assistance Foundation which helps people afford co-payments for chemotherapy and targeted treatment drugs.  To learn more, visit www.cancercarecopay.org.

Meal Assistance

CancerCare partners with Magnolia Meals at Home™, a meal delivery program that helps patients by providing nourishing meals to households affected by breast cancer so that loved ones can spend more quality time together.  This program is currently available in and around Woodcliff Lake, NJ, Andover, MA and Raleigh-Durham, NC as well as areas in New York, New Hampshire and Boston, MA. Eligible participants will receive up to two months of home meal deliveries, each of which will include ten meals and up to ten additional meals for their family members, if requested by the participant.  Visit the Magnolia Meals at Home website for more information.

 

The bottomline:  CancerCare social workers are well trained and experienced in helping patients and their families find the resources and support they need to cope with cancer… free of charge.  So if you or a loved one has been diagnosed with cancer, connect with CancerCare… they can offer help and hope.  

FREE Running Program for Cancer Survivors in MD, DC, VA, NY & Chicago

Andy & Alan 2004 Bay Bridge 10K

Andy & Alan @ Rockville Rotary Twilighter 8K Runfest 1992

 

Pictured above is my husband Alan (on the right) with his childhood friend Andy.  Since this picture was taken, Andy has run more than 30 marathons, completed 13 triathlons and has become a certified running coach.  Despite all these accomplishments, Andy always made time to go for a run or walk with Alan, even after he was diagnosed with cancer.

 

It was no surprise to me that Andy connected with The Ulman Cancer Fund’s CANCER to 5K Training Program - a FREE 12-week training program designed to introduce or reintroduce cancer survivors to training for and completing a 5K road race.  Amazing, right?!

ABOUT The CANCER to 5K Training Program:

Research has now shown that exercise is especially important for cancer survivors both in and out of active treatment.  Regular exercise not only improves mood, boosts self-confidence and reduces fatigue, but there is loads of evidence suggesting that higher levels of physical activity can help keep the cancer from recurring.

 

The Cancer to 5K Training Program is a progressive run/walk program designed to get cancer survivors to the 5K finish-line happy, healthy and injury-free.  

*  Who can join?  Cancer to 5K is open to any cancer survivor regardless of age, location, treatment status or fitness level.  Survivors who have completed treatment as well as survivors who are currently undergoing treatment can participate.

*  Where is training held?  If you live in the following areas, certified running coaches and experienced volunteer runners (aka “Sherpas”) will help train you in a small group setting.  Each 12-week session is limited to 10 participants.  Click HERE for exact locations in:

      • Washington DC/Northern Virginia
      • Montgomery County Maryland
      • Howard County, Maryland
      • Baltimore, Maryland
      • New York, NY
      • Chicago, IL.

* What if you live elsewhere?  If you live outside the current group training areas, you can still participate with The CANCER to 5K “At Home” Training Program.  As a Cancer to 5K “At Home” participant, you will receive one-on-one coaching with a Cancer to 5K coach. Workouts will be sent to you via email, and you will have access to your coach via email and phone.

Registration for the fall training season is now OPEN!  
Group workouts will begin in August 2014.
“At-Home” participants can begin training anytime.

 

For more information, contact Program Manager Laura Scruggs via email at laura@ulmanfund.org  or via 410.964.0202 x108.  

Please note:  A medical waiver must be signed by the participant’s current primary care physician to ensure that training for a 5K won’t negatively impact treatment or recovery.

 

Financial Assistance from Walk In My Shoes Cancer Foundation

 

 

If you’ve been diagnosed with cancer and are having a hard time making ends meet, check out the Walk In My Shoes Foundation.

Walk In My Shoes Foundation assists cancer patients with paying rent, mortgages, utility bills, medication, purchasing gas cards, buying groceries, etc.  To qualify for assistance, which is based on availability, the following guidelines have been set:

  • Only patients undergoing cancer treatment are eligible for assistance.
  • Only bills in patient’s name are eligible for payment.
  • Maximum assistance is $500.00 per patient per calendar year.
  • First come first serve basis.
  • No income guidelines.
  • Men, women, children are welcome to apply regardless of type of cancer.
  • Cash will not be disbursed.

To apply, please complete the form on the Walk In My Shoes Foundation CONTACT US page or email them directly at info@walkinmyshoesfoundation.com.  Someone should contact you within 48 hours.

Wish Fulfillment Organizations for People With Cancer

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Some wishes can come true.  Just ask anyone who has worked with one of the organizations listed below as they work to make wishes come true for people with cancer and other life-threatening illnesses.  Some work specifically to grant wishes of children; others with adults; and still others for families who have a parent battling cancer.  The various organizations have differing eligibility requirements and limitations regarding the types of wishes they grant.  Each organizaion is amazing in their own way.

Please note:  To find out more information on getting a wish granted, please contact each organization directly.  If you know of other organizations that offer wish fulfillment, please email me at robyn@cancerhawk.com and I’ll post their information.

 

3 Little Birds 4 Life  This nonprofit grants wishes to young adults with cancer ages 18-40.  Wishes that include travel are restricted within the continental United States.

Believe in Tomorrow Children’s Foundation  Best known for offering parents temporary housing near the hospitals where their children are being treated, this foundation also provides funding for various adventures for children with advanced diseases.

Children’s Wish Foundation International  This Atlanta-based nonprofit grants wishes to children with advanced illness, including advanced cancer, who are younger than 18 years old. Children who are “too young to make a wish that is truly their own” can participate in the organization’s Young Minds program, which provides children younger than three years old with an assortment of gifts to entertain and provide comfort.

The Clayton Dabney Foundation for Kids with Cancer  Through the Medicine of the Heart program, this foundation anonymously grants wishes to children with advanced cancer who come from financially needy families. A health care provider, such as a doctor or nurse, must nominate the child.

Compassion Partners  This Disney program provides children and adults free passes to several theme parks in Florida, including Disney theme parks, Sea World, Universal Studios Orlando, and Busch Gardens. Passes are available by calling 407-396-6065 or 407-828-2298.

Deliver the Dream  This organization provides families living with an advanced illness whether the illness involves a child or a parent the chance to relax, enjoy time together, and forge bonds with others during a three-day retreat. Health care providers or one of Deliver the Dream’s partnering organizations are responsible for recruiting the family for participation.

The Dream Factory  The Dream Factory grants wishes to critically and chronically ill children who are between three and 18 years old. Parents, guardians, physicians, other caregivers, and children with advanced diseases can make referrals to begin the wish-granting process.

Dream Foundation  The Dream Foundation fulfills the wishes of adults suffering from advanced illnesses. The foundation seeks to help adults find peace and closure with the realization of a final wish. Dream Foundation grants requests to adults older than 18 years old whose life expectancy, confirmed by their physicians, is one year or less. They must also confirm that they have limited resources.

Give Kids the World  The Give Kids the World Village is a 70-acre resort in Central Florida that offers accommodation, entertainment, and other attractions for children with life-threatening illnesses. The charity provides children between the ages of three and 18 and their families free, one-week vacations to help create long-lasting memories. A child must be sponsored by one of more than 250 wish-granting organizations in the country or a children’s hospital affiliated with Give Kids the World.

Granted Wish Foundation  The Granted Wish Foundation fulfills wishes for “disabled, disadvantaged, and deserving individuals and families” and works with people of all ages. In addition, the foundation has a special program that provides luxury air transportation for children with advanced illness and their families to travel to receive life-saving treatment.

Hope Kids  This charity hosts regular events and activities (a “never-ending” wish) that help restore hope for the future. Hope Kids also provides a support community for children with advanced illnesses and their families.

The Jack & Jill Late Stage Cancer Foundation The J&J Late Stage Cancer Foundation is a national resource providing WOW! experiences for children and families who have a Mom or Dad with late stage, limited life expectancy cancer.

Jason’s Dream for Kids  Jason’s Dreams for Kids grants wishes to children diagnosed with a progressive, degenerative, or malignant condition. The organization relies on medical professionals and parents for referrals and determines medical eligibility with the help of the treating physician.

Kids Wish Network  The Kids Wish Network grants wishes for children who are between three and18 years old. The organization’s “Our Hero” program also provides wishes for children who have overcome life-altering circumstances and endured great pain and suffering. Anyone can refer a child, including a family member, friend, nurse, doctor, or social worker.

Make-a-Wish Foundation  The nation’s largest wish-granting organization, Make-a-Wish fulfills the wishes of children between two and a half and 18 years old with life-threatening medical conditions, aiming to “enrich the human experience with hope, strength, and joy.” The organization accepts referrals from health care professionals and parents, and children can even nominate themselves. After evaluating medical eligibility, a team of volunteers meets with the child to help identify the child’s “true wish.”

Making Memories Breast Cancer Foundation  Making Memories grants wishes for patients with metastatic breast cancer, while raising awareness about the disease. People with advanced breast cancer or their friends and family members can submit wish requests.

The Marty Lyons Foundation Founded by professional football player Marty Lyons after serving as a surrogate father of a three-year-old boy with a life-threatening illness, the foundation helps grant wishes for children with advanced illnesses.

Memories of Love  This organization provides children who have parents with advanced illness with a chance to form long-lasting memories by going on vacation with their entire family. Families are sent on a five-day, all-expense-paid vacation to Orlando, Florida. A physician, health care provider, or care organization must identify and nominate a parent who has an advanced illness.

Never Too Late  This organization helps make wishes and dreams come true for people age 65 and older with advanced illness, aiming to honor the lives they have lived. The organization requests some financial support from family members to fulfill wish requests.

Nicki Leach Foundation  This foundation provides financial assistance to teenagers and adults between 16 and 25 years old who have advanced cancer. The foundation’s clients often use this assistance to pay for specific needs or activities that they may not be able to afford, such as clothing, college, a cell phone, or bills. The applicant’s oncologist must confirm diagnosis.

Operation Liftoff  Operation Liftoff provides children with advanced illness three types of trips: “dream trips” for children and their families, “care trips” for medical treatment in other regions, and “group trips” to help teenagers with advanced illnesses leave the hospital and bond with peers. Parents and caregivers complete a form to request a trip.

The Rainbow Connection  This organization helps grant wishes to children from Michigan facing an advanced illness. To qualify, children must be between two and a half and 18 years old, live in Michigan, be diagnosed with an advanced illness, and have the diagnosis verified by a physician. In addition, they must not have received a wish fulfillment from any other organization. Medical professionals, parents or guardians, and children may submit wish requests.

Second Wind Dreams  This international fulfillment organization works to enhance the life of those living in elder care communities such as nursing, assisted living, and hospice facilities by granting wishes. The organization grants relationship-based dreams, needs-based dreams, lifelong dreams, and “I don’t want to grow up” dreams, among others.

A Special Wish Foundation  This foundation grants wishes for infants, children, and young adults younger than 21 years old who have been diagnosed with an advanced illness. Wishes fall into three categories, including “a special gift,” “a special place,” or “a special hero.”

Starlight Foundation  This foundation provides entertainment, education and family activities for seriously ill children and their families. Starlight Wishes provide a dream-come-true experience to seriously ill or injured children ages 4 to 18.

Sunshine Foundation  This foundation is committed to fulfilling the dreams of children three to 18 years old who have advanced cancer or special needs and those who have faced abuse.

United Special Sportsman Alliance  This wish-granting organization specializes in providing children and adults with disabilities or advanced illness an outdoor adventure of their dreams. Trips include hunting, fishing, water sports, and other activities.

The Warrior’s Wish Foundation  This charity grants wishes for U.S. military veterans with advanced illness and their families. Gifts range from hearing aids and scooter chairs to family vacations and trips to attend reunions. The application requires a current photograph, a description of the wish, and an explanation of why it’s meaningful.

Wishing Star  This charity grants wishes to children with life-threatening illnesses who are between three and 21 years old and live in Eastern and Central Washington and Idaho. Children do not have to be terminally ill to qualify.

Wish Upon A Star  This  non profit, law enforcement effort is designed to grant the wishes of children ages 3-18 years old living in California who are afflicted with high-risk and life-threatening illnesses.

Wishing Well Foundation USA  This New Orleans-based organization is committed to granting wishes for children with advanced illness. Children younger than 18 years old are eligible to apply.

 

(Source:  Resources listed above were found on Cancer.netDuke Cancer CenterPatient Resource & Stupid Cancer)

 

Applying for Social Security Disability Benefits with Cancer

 

Meet GUEST BLOGGER Ram Meyyappan. Ram is the senior editor and manager of the Social Security Disability Help website.  Social Security Disability Help contains information on how to apply for disability with over 400 conditions, helpful tips, FAQs along with an extensive disability glossary.

 

If you are a parent suffering from any type of cancer, the condition or the effects of the treatments you are undergoing may make it difficult to take care of your kids, let alone returning to work. In such cases, financial assistance may be available through one of the two Social Security Disability programs. There are two disability programs available to those who qualify under the SSA’s disability criteria. These include the SSI (Supplemental Security Income) program and the SSDI (Social Security Disability Insurance) program.

SSI

SSI is a needs-based program. In order to be eligible, you must be deemed disabled by the Social Security Administration and you must meet certain financial criteria. As of 2013, to qualify for SSI, you must not earn more than $710 as an individual or $1,060 as a couple. You must also not have assets that exceed $2,000 as an individual or $3,000 as a couple.

SSDI

Unlike SSI, SSDI is not a needs-based program. There are no financial criteria to meet. You must, however, have earned enough work credits through your previous work history. In order to have enough work credits to qualify for SSDI, you must have worked five of the past ten years. If you are not old enough to have worked five of the past ten years, you need to have worked half of the time you were able to do so.

Cancer and Meeting the Medical Requirements

The SSA uses a manual called “the blue book” to evaluate whether or not a condition qualifies for disability benefits. Cancer is covered in Section 13 of the SSA’s blue book under Malignant Neoplastic Diseases. Just being diagnosed with cancer alone does not mean that you will qualify for benefits unless it is a type of cancer that is listed in the compassionate allowances program. In most cases, the cancer has to be inoperable, have distant metastases (has spread), or be recurrent after surgical procedures or irradiation.

You will need to prove through your medical records and work history that your cancer prevents you from working at the job at which you were previously working or any other job for which you are qualified.

Qualifying Under the Compassionate Allowances Program

Certain types of cancer can qualify for Social Security Disability benefits in less than two weeks under the SSA’s Compassionate Allowances program. Under this program, individuals who are suffering from very severe conditions can bypass the standard disability claim process and be approved for benefits a lot faster. You will need a physician’s opinion stating that the cancer is not operable or an operative note stating that the cancer was not completely resected in order to qualify under this program. If an operative note is not available, a pathology report indicating positive margins can be used. When applying for benefits, make sure you include this medical documentation and make it clear how you qualify for benefits under the Compassionate Allowances guidelines.

There are numerous cancers that are listed in the compassionate allowance program. For a complete list of all compassionate allowances conditions, please visit: http://www.disability-benefits-help.org/compassionate-allowances.

How to Apply for Social Security Disability Benefits

You can apply for Social Security Disability benefits online or in person at your local Social Security office. Make sure that you have all of the medical evidence that you will need at the time of your application. While the SSA will have you fill out forms that allow them to request copies of your medical records, it is always best to submit medical records on your own as a part of your application to ensure that the SSA receives complete documentation that supports your disability claim.

Financial Assistance for Young Adult Cancer Survivors (Applications Due July 19)

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Common challenges facing many 20 & 30 year olds include paying off school loans, finding a job, securing health insurance and learning to live on their own.  These challenges are often compounded if there’s a history of cancer. When many young adults are finished with treatment, medical bills may have piled up, they are now too old to be on their parent’s insurance, and the debt starts spiraling out of control… but there’s help….

 

The SAM Fund provides financial assistance to young adults as they move forward with their lives after cancer.  Grants & scholarships can cover a wide range of post-treatment financial needs, including (but not limited to): current and residual medical bills, car and health insurance premiums, rent, utilities, tuition and loans, family-building expenses, gym memberships and transportation costs.  In 2011, SAM Fund awarded a total of $135,000 in grants and scholarships to 92 young adult survivors all over the country.  BTW, SAM Fund stands for Surviving And Moving Forward.  LOVE IT!

 

2013 Application Process is NOW OPEN.  Here’s how it works:

1.  Applicants must be between the ages of 17 and 39; a resident of the United States; and either finished with active treatment and free of cancer OR be one year following the completion of planned therapy OR be in remission on maintenance therapy.  If you have questions about eligibility, please email grants@thesamfund.org.

 

2.  Anyone interested in applying must first submit Part One of the application which is due by Friday, July 19th at 5:00 pm EST.  After a review period, selected applicants will then be invited to submit Part Two. Those applicants will be notified in November as to whether they have received a grant.

 

3.  Interested in learning more?

 

Financial Assistance For Cancer Patients Who Can Not Work Due to Cancer Treatments

 

The financial hardship that a diagnosis of cancer can bring has the potential to be tremendous.  Many people are unable to work during treatments and without income, it is difficult for many to cover their every day living expenses not to mention all of the added expenses related to having a medical condition like co-pays, RXs, supplements, OTC meds, testing that insurance doesn’t cover.  What are people in this situation to do? 

 

Check out The C.H.A.I.N. Fund, Inc… they provide financial assistance to cancer patients who are unable to work as a result of undergoing strenuous cancer treatments.  The C.H.A.I.N. Fund grants can assist in areas such as mortgage, rent, utilities, doctor visit co-pays, prescriptions co-pays (for cancer drugs only), insurance co-pays, & special food needs.   These grants can not be used for any medical treatments, insurance deductibles, car payments, car insurances, cable television, internet services or cell phones.

 

Click HERE for more information as well as an application.  All assistance is made at the sole discretion ofThe C.H.A.I.N. Fund, Inc.  Assistance is given on an interim basis (up to 12 months at most) and any payments awarded will be  made directly to the recipient’s service providers. Additionally, the following exclusions apply:

  1. You do NOT qualify if you are currently receiving monthly financial aid through your State and/or Social Security Disability Programs OR a local Department of Human Service or Welfare.
  2. You do NOT qualify if you are retired and receiving a monthly pension check from a former employer.
  3. You do NOT qualify if your utility bills are currently being paid through a local Low income Home Energy Assistance Program.