Alan just a few months before he was diagnosed with Pleomorphic Rhadbdomyosarcoma
My friend Jim always shares the BEST information with me… in fact, he regularly sends me info that I write about in CancerHAWK. (Thank you Jim, you are amazing!) Jim also lost a dear friend to sarcoma which is what led him to co-found Champions Oncology (along with my very favorite doctor in the world, Dr. David Sidransky).
Today, Jim shared with me The Faces of Sarcoma, an amazing project led by the Liddy Shriver Sarcoma Initiative, an incredible resource for anyone touched by sarcoma. Sarcomas are so rare that most people have never even heard of them. I know we hadn’t until that fateful day in 2009.
Here’s the dealio (as my daughter always says)…
Sarcoma is a very rare type of cancer (comprising only 1% of all adult cancers & 15% of all childhood cancers) that arises from connective tissue and can develop in muscle, bone, fat or cartilage. Sarcomas can arise anywhere in the body and are frequently hidden deep in limbs. The Faces of Sarcoma is literally trying to put a human face to the disease… they are collecting photos of sarcoma patients, survivors & those who have lost their lives to sarcoma so the sarcoma story can be told in a more personal way. There are currently over 500 photos in the collection. I just submitted a picture of Alan as well as info on our journey. In time, they will make a video from these photos to complement an earlier video “A Forgotten Cancer” which was translated into 10 languages in 2009.
By increasing public awareness of sarcoma, raising funds to award research grants and providing support and timely info to sarcoma patients, their families & medical professionals, the Liddy Shriver Sarcoma Initiative and The Faces of Sarcoma hope to make a difference in the lives of anyone touched by sarcoma.
So if you know anyone who has been touched by sarcoma, send them this information…. Knowledge is power… Share the power!