Personalizing YOUR Cancer Treatment (part 4): Do you know your cancer biomarkers?

Personalized-Medicine

In the near future, instead of saying, “I have breast cancer,” a patient will say something like , “I have a HER2-positive carcinoma with a KRAS mutation.”  Cancer will be defined by it’s own unique molecular profile and biomarkers rather than the body part where it originated.

To learn more about the dozens of biomarkers already being used to guide cancer treatment, check out the table below. Please note: there are thousands of known biomarkers without currently known effectiveness or relevance to cancer care. This table only represents the biomarkers that are currently known to be significant in informing cancer care today.*

Biomarker About Cancers that may benefit from testing Treatments associated with response or lack of response/resistance*
ALK anaplastic lymphoma kinase, an enzyme that can form a oncogenic fusion gene with EML4 lung (non-small cell), lymphoma (anaplastic large-cell), nervous system (familial neuroblastoma) crizotinib (Xalkori®), pemetrexed (Alimta®)
AR androgen receptor, part of the nuclear hormone receptor superfamily, active in cell signaling and therefore cell multiplication and growth prostate, breast, ovarian, bladder, lung (non-small cell) bicalutamide (Casodex®), flutamide (Eulexin®), goserelin (Zoladex®), leuprolide (Lupron®), abarelix (Plenaxis®), gonadorelin (Factrel®)
BRAF also know as v-raf murine sarcoma viral oncogene homolog B1, a proto-oncogene in the RAF/MIL family of molecules active in MAP/ERK cell signaling, promotes cell multiplication and growth colon, skin (melanoma), lung (adenocarcinoma), thyroid (papillary thyroid carcinoma), nervous system (pleomorphic xanthoastrocytomas with and without anaplasia) cetuximab (Erbitux®), panitumumab (Vectibix®), vemurafenib (Zelboraf®)
BRCA1 a so-called “breast cancer gene”, its expression in many cancers can indicate potential response to certain types of therapies lung, ovarian cisplatin (Platinol®)
c-Kit cytokine receptor also know as CD117, a proto-oncogene that interacts with cell growth factors, plays a roll in cell survival, multiplication and differentiation GIST (gastrointestinal stromal tumor), skin (melanoma), blood (acute myelogenous leukemia) imatinib (Gleevec®), sorafenib (Nexavar®), sunitinib (Sutent®)
c-MET also known as MET (mesenchymal epithelial transition factor) or HGFR (hepatocyte growth factor receptor), a proto-oncogene active in cell signaling, promotes cancer cell growth and multiplication lung (non-small cell), ovarian erlotinib (Tarceva®), gefitinib (Iressa®)
COX-2 cyclooxygenase-2, also known as protaglandin-endoperoxide synthase-2 (PTGS2), an enzyme important to creation of prostaglandins, which are messenger molecules that play a role in many cancers lung (non-small cell) celecoxib (Celebrex®)
EGFR epidermal growth factor receptor, also known as ErbB-1 or HER1, a receptor tyrosine kinase active in cell signaling, promotes cell growth and multiplication lung (non-small cell) cetuximab (Erbitux®), erlotinib (Tarceva®), gefitinib (Iressa®), panitumumab (Vectibix®)
EGFR secondary mutation (T790 M) a mutation of the EGFR gene associated with acquired resistance to certain treatments lung (non-small cell), colorectal, head and neck resistance to erlotinib (Tarceva®), gefitinib (Iressa®)
ER estrogen receptor, part of the nuclear hormone family of intracellular receptors, active in cell multiplication breast, ovarian, female genital tract cancer anastrazole (Arimidex®), exemestane (Aromasin®), letrozole (Femara®), tamoxifen (Nolvadex®), megestrol acetate (Megace®, Megace® ES), fulvestrant (Faslodex®), toremifene (Fareston®), medroxyprogesterone, (Provera®, Amen®, Curretab®, Cycrin®), goserelin (Zoladex®), leuprolide (Eligard®, Lupron®, Viadur®)
ERCC1 excision repair cross-complementation group 1, an enzyme active in DNA repair and therefore a sign of resistance to treatments that work by disrupting tumor DNA lung (non-small cell and small cell), gastric, ovarian, colorectal, bladder resistance to cisplatin (Platinol®), carboplatin (Paraplatin®), oxaliplatin (Eloxatin®)
HER2 human epidermal growth factor receptor 2, also known as HER2/neu or ErbB-2, a receptor tyrosine kinase active in cell signaling, promotes cell growth and multiplication breast, gastroesophageal, gastric, ovarian, colorectal lapatinib (Tykerb®), trastuzumab (Herceptin®), doxorubicin (Adriamycin®, Rubex®), liposomal doxorubicin (Caelyx®, Myocet®), epirubicin (Ellence®)
KRAS proto-oncogene of the Kirsten murine sarcoma virus, active in cell signaling in the EGFR pathway, promotes cell growth and multiplication lung (non-small cell), colon, pancreatic cetuximab (Erbitux®), erlotinib (Tarceva®), gefitinib (Iressa®), panitumumab (Vectibix®)
MGMT O-6-methylguanine-DNA methyltransferase is a gene that encodes a DNA repair enzyme, loss of MGMT may play a role in cancer formation, MGMT can also interfere with treatments that work by disrupting tumor DNA breast, lung (non-small cell), esophageal, brain (glioblastoma multiforme, oligodendrogliomas), skin (melanoma), pituitary gland (carcinoma) lack of response to temozolomide (Temodar®)
MRP1 multidrug resistance-associated protein 1, an ATP-dependent transmembrane drug efflux pump associated with resistance to many drugs breast, lymphoma, head and neck lack of response to anthracyclines such as doxorubicin (Adrimycin®), vinca alkaloids, and methotrexate (Trexall®)
PGP p-glycoprotein, also known as P-gp, an ATP-dependent transmembrane drug efflux pump associated with acquired resistance to many drugs breast, ovarian, lymphoma, head and neck lack of response to anthracylines such as doxorubicin (Adriamycin®), epirubicin (Ellence®) and liposomal-doxorubicin (Doxil®), and other drugs such as paclitaxel (Taxol®), docetaxel (Taxotere®), vinblastine (Velban®), vincristine (Oncovin®), vinorelbine (Navelbine®)
PIK3CA a specific mutation within the PI3 (phosphoinositide 3) kinase pathway or a gene copy number variation, aberrations along the PI3K pathway are associated with many cancers colorectal, brain (glioblastoma), gastric, breast, lung, ovarian lapatinib (Tykerb®); resistance to cetuximab (Erbitux®), panitumumab (Vectibix); decreased response to trastuzumab (Herceptin®)
PR progesterone receptor, also called PGR, part of the nuclear hormone family of intracellular receptors, active in cell multiplication breast, ovarian, female genital tract cancer letrozole (Femara®), tamoxifen (Nolvadex®), fulvestrant (Faslodex®), toremifene (Fareston®), exemestane (Aromasin®), anastrozole (Arimidex®), goserelin (Zoladex®), gonadorelin (Factrel®), leuprolide (Eligard®, Lupron®, Viadur®), medroxyprogesterone (Provera®, Amen®, Curretab®, Cycrin®), megestrol acetate (Megace®, Megace® ES)
PTEN phosphatase and tensin homolog, a tumor suppressor active in EGFR, HER2 and AKT cell signaling pathways breast, colon, lung (non-small cell), brain (glioblastoma), head and neck low expression associated with lack of response to cetuximab (Erbitux®), gefitinib (Iressa®), trastuzumab (Herceptin®), panitumumab (Vectibix®), erlotinib (Tarceva®)
RRM1 ribonucleotide reductase subunit M1, an enzyme required for DNA synthesis from RNA and therefore can interfere with treatments that work by disrupting RNA activity lung (non-small cell), pancreatic high expression associated with lack of response to gemcitabine (Gemzar®), hydroxyurea (Hydrea®, Droxia®)
SPARC secreted protein acidic rich in cysteine, a protein active in tumor growth and spreading skin (melanoma), breast, gastric, pancreatic, head and neck albumin-bound paclitaxel/nab-paclitaxel (Abraxane®)
TLE3 a member of the transducin-like enhancer of split family of proteins, implicated in creation of tumors breast, ovarian taxane therapy such as paclitaxel (Taxol®), docetaxel (Taxotere ®)
TOPO2A topoisomerase IIA, an enzyme active in DNA synthesis and repair breast, colon, ovarian, lung (small cell) doxorubicin (Adriamycin®), epirubicin (Ellence®, Pharmorubucin®), liposomal doxorubicin (Caelyx®, Myocet®)
TS thymidylate synthetase, an enzyme active in DNA synthesis and repair, can be inhibited by certain compounds breast, colon, gastric, head and neck, liver, pancreatic, lung (non-small cell) lack of response to 5-fluorouracil (Adrucil®), cytarabine (Cytosar-U®), pemetrexed (Alimta®)
TUBB3 Class III -tubulin, protein found in microtubules which are important cell structures ovarian, lung (non-small cell) taxanes such as paclitaxel (Taxol®), docetaxel (Taxotere ®), vinca alkaloids such as vinorelbine (Navelbine®)

* Biomarker status (overexpressed, underexpressed, positive or negative for specific mutations, etc.) determines whether that biomarker is associated with response, lack of response or resistance to each treatment. Treatment associations are from published, peer-reviewed medical literature. Citations available upon request. Only your doctor can decide which treatments are appropriate for you.

**Got questions about YOUR biomarkers, e-mail PatientNavigator@carisls.com.  A Patient Navigator who is well versed in molecular profiling and biomarkers will answer your questions.  (this is a FREE service provided by Caris Life Sciences.) 

*** Source:  MyCancer.com (an educational resource sponsored by Caris Life Sciences®) is a fantastic website for cancer patients and their caregivers that provides information about personalizing your cancer treatment using molecular profiling and cancer biomarkers.

If You’ve Been Touched By Breast Cancer & Are Planning A Wedding, Read On…

Image credit:  123RF Stock Photo

Image credit: 123RF Stock Photo

 

It’s that time of year again when The Wedding Pink presents one couple whose lives have been recently touched by breast cancer with a FREE dream wedding, valued between $30,000- $40,000.  OMG! So amazing!!

 

Founder Cheryl Ungar is a 23-year breast cancer survivor and a wedding photographer.  She has put together an extraordinary team of some of Colorado’s top wedding vendors — all of whom have generously agreed to donate their services and products to ensure The Wedding Pink is a spectacular event for one very special couple.

 

Here’s the dealio (as my daughter always says)…  If your life has been recently touched by breast cancer (fyi, the experience is not limited to the bride, but could be with the bride or groom’s extended family member) AND are engaged or soon-to-be-engaged, you could be the lucky winner of this fairy tale wedding.

 

This year’s Wedding Pink will will take place May 15, 2015 in Denver, Colorado.  Applications are open to ANY legal resident of the US regardless of what state they live in.  Submissions will be open from August 1 – August 10.  The winning couple will be selected in early September 2014.  There are no income qualifications.  Winners will be chosen by a panel of judges.  To learn more about the submission criteria, click HERE.

Wishing you all a lifetime of health, love & happiness together….

Personalizing YOUR Cancer Treatment: Questions to Ask Your Oncologist (part 3):

Molecular profiling to identify cancer biomarkers has the potential to identify new treatment options for your cancer. As with any treatment selection, you and your Oncologist need to work together to determine what will work best for your particular situation.  Below are questions you can ask your Oncologist to begin the conversation on personalizing your cancer treatment:  

MyCancer.com – Questions to Ask Your Doctor

What Does It Mean to Personalize Your Cancer Treatment? (part 2)

 

FACT:  Over the past 40+ years, oncologists have taken a “one size fits all” approach to treating cancer.  The only efforts at personalization have been to tailor specific chemotherapies to the original location of the cancer. 

 

FACT:  We know that two people with the same cancer diagnosis often times respond differently to the exact same treatments.  Researchers have found that the genetic differences in people and their tumors explain many of these different responses to treatment.

 

FACT:  Because each person’s cancer is unique, finding the right treatment can be difficult.

 

FACT:  You may have heard the terms “targeted therapy”, “personalized therapy” or “precision therapy”.  These are simply different terms for individualizing cancer treatments.  Regardless of what you call it, personalizing your cancer treatment will require some form of advanced genetic and molecular tumor analysis (called molecular profiling). 

 

FACT:  Molecular profiling searches for unique genes, proteins and molecules (called cancer biomarkers) that provide information about how your particular cancer functions.  This information can help identify potential treatments to guide doctors on which medications are likely to work best for a specific person’s cancer. 

 

To learn more about molecular profiling, cancer biomarkers and personalized treatment, check out these 2 fantastic sites:

MyCancer.Com

Is My Cancer Different?  

 

To speak with a Patient Navigator about molecular profiling, please e-mail PatientNavigator@carisls.com.  This is a FREE service provided by Caris Life Sciences.  

 

 

Personalizing Your Cancer Treatment (part 1)

Personalized-Medicine

 

I’ll never forget the heartbreaking moment when we heard Alan’s cancer was not cureable. In fact, my heart just skipped a few beats as I recall that day. One of my very favorite doctors (Dr. David Sidransky of Champions Oncology) told us not to give up hope. He explained that the oncology community was making great strides in turning cancer into a manageable disease rather than a death sentence. He said, New medical advancements that personalize cancer treatments are exploding.  The key is to be alive when the next breakthrough is discovered. So let’s figure out how to extend Alan’s life so that he has a shot of being here when that breakthrough happens.”

 

Fast forward to today-4 ½ years later- much progress has been made in personalizing cancer treatments.  Although still not considered mainstream, personalized medicine is absolutely changing how cancer drugs are developed and prescribed and how many cancer patients are treated.  Over the next few weeks, I will be writing a series of posts about breakthroughs and medical advancements that help doctors personalize cancer treatments such as molecular profiling, biomarker testing, immunotherapy, tumorgrafts and more.  If you read a post that resonates with you, share it with your doctor as you can help guide decision making when it comes to your own healthcare.  You are your own best advocate!

 

 

 

Wish Fulfillment Organizations for People With Cancer

You-Dont-Need-Magic-To-Make-Wishes-Come-True

 

Some wishes can come true.  Just ask anyone who has worked with one of the organizations listed below as they work to make wishes come true for people with cancer and other life-threatening illnesses.  Some work specifically to grant wishes of children; others with adults; and still others for families who have a parent battling cancer.  The various organizations have differing eligibility requirements and limitations regarding the types of wishes they grant.  Each organizaion is amazing in their own way.

Please note:  To find out more information on getting a wish granted, please contact each organization directly.  If you know of other organizations that offer wish fulfillment, please email me at robyn@cancerhawk.com and I’ll post their information.

 

3 Little Birds 4 Life  This nonprofit grants wishes to young adults with cancer ages 18-40.  Wishes that include travel are restricted within the continental United States.

Believe in Tomorrow Children’s Foundation  Best known for offering parents temporary housing near the hospitals where their children are being treated, this foundation also provides funding for various adventures for children with advanced diseases.

Children’s Wish Foundation International  This Atlanta-based nonprofit grants wishes to children with advanced illness, including advanced cancer, who are younger than 18 years old. Children who are “too young to make a wish that is truly their own” can participate in the organization’s Young Minds program, which provides children younger than three years old with an assortment of gifts to entertain and provide comfort.

The Clayton Dabney Foundation for Kids with Cancer  Through the Medicine of the Heart program, this foundation anonymously grants wishes to children with advanced cancer who come from financially needy families. A health care provider, such as a doctor or nurse, must nominate the child.

Compassion Partners  This Disney program provides children and adults free passes to several theme parks in Florida, including Disney theme parks, Sea World, Universal Studios Orlando, and Busch Gardens. Passes are available by calling 407-396-6065 or 407-828-2298.

Deliver the Dream  This organization provides families living with an advanced illness whether the illness involves a child or a parent the chance to relax, enjoy time together, and forge bonds with others during a three-day retreat. Health care providers or one of Deliver the Dream’s partnering organizations are responsible for recruiting the family for participation.

The Dream Factory  The Dream Factory grants wishes to critically and chronically ill children who are between three and 18 years old. Parents, guardians, physicians, other caregivers, and children with advanced diseases can make referrals to begin the wish-granting process.

Dream Foundation  The Dream Foundation fulfills the wishes of adults suffering from advanced illnesses. The foundation seeks to help adults find peace and closure with the realization of a final wish. Dream Foundation grants requests to adults older than 18 years old whose life expectancy, confirmed by their physicians, is one year or less. They must also confirm that they have limited resources.

Give Kids the World  The Give Kids the World Village is a 70-acre resort in Central Florida that offers accommodation, entertainment, and other attractions for children with life-threatening illnesses. The charity provides children between the ages of three and 18 and their families free, one-week vacations to help create long-lasting memories. A child must be sponsored by one of more than 250 wish-granting organizations in the country or a children’s hospital affiliated with Give Kids the World.

Granted Wish Foundation  The Granted Wish Foundation fulfills wishes for “disabled, disadvantaged, and deserving individuals and families” and works with people of all ages. In addition, the foundation has a special program that provides luxury air transportation for children with advanced illness and their families to travel to receive life-saving treatment.

Hope Kids  This charity hosts regular events and activities (a “never-ending” wish) that help restore hope for the future. Hope Kids also provides a support community for children with advanced illnesses and their families.

The Jack & Jill Late Stage Cancer Foundation The J&J Late Stage Cancer Foundation is a national resource providing WOW! experiences for children and families who have a Mom or Dad with late stage, limited life expectancy cancer.

Jason’s Dream for Kids  Jason’s Dreams for Kids grants wishes to children diagnosed with a progressive, degenerative, or malignant condition. The organization relies on medical professionals and parents for referrals and determines medical eligibility with the help of the treating physician.

Kids Wish Network  The Kids Wish Network grants wishes for children who are between three and18 years old. The organization’s “Our Hero” program also provides wishes for children who have overcome life-altering circumstances and endured great pain and suffering. Anyone can refer a child, including a family member, friend, nurse, doctor, or social worker.

Make-a-Wish Foundation  The nation’s largest wish-granting organization, Make-a-Wish fulfills the wishes of children between two and a half and 18 years old with life-threatening medical conditions, aiming to “enrich the human experience with hope, strength, and joy.” The organization accepts referrals from health care professionals and parents, and children can even nominate themselves. After evaluating medical eligibility, a team of volunteers meets with the child to help identify the child’s “true wish.”

Making Memories Breast Cancer Foundation  Making Memories grants wishes for patients with metastatic breast cancer, while raising awareness about the disease. People with advanced breast cancer or their friends and family members can submit wish requests.

The Marty Lyons Foundation Founded by professional football player Marty Lyons after serving as a surrogate father of a three-year-old boy with a life-threatening illness, the foundation helps grant wishes for children with advanced illnesses.

Memories of Love  This organization provides children who have parents with advanced illness with a chance to form long-lasting memories by going on vacation with their entire family. Families are sent on a five-day, all-expense-paid vacation to Orlando, Florida. A physician, health care provider, or care organization must identify and nominate a parent who has an advanced illness.

Never Too Late  This organization helps make wishes and dreams come true for people age 65 and older with advanced illness, aiming to honor the lives they have lived. The organization requests some financial support from family members to fulfill wish requests.

Nicki Leach Foundation  This foundation provides financial assistance to teenagers and adults between 16 and 25 years old who have advanced cancer. The foundation’s clients often use this assistance to pay for specific needs or activities that they may not be able to afford, such as clothing, college, a cell phone, or bills. The applicant’s oncologist must confirm diagnosis.

Operation Liftoff  Operation Liftoff provides children with advanced illness three types of trips: “dream trips” for children and their families, “care trips” for medical treatment in other regions, and “group trips” to help teenagers with advanced illnesses leave the hospital and bond with peers. Parents and caregivers complete a form to request a trip.

The Rainbow Connection  This organization helps grant wishes to children from Michigan facing an advanced illness. To qualify, children must be between two and a half and 18 years old, live in Michigan, be diagnosed with an advanced illness, and have the diagnosis verified by a physician. In addition, they must not have received a wish fulfillment from any other organization. Medical professionals, parents or guardians, and children may submit wish requests.

Second Wind Dreams  This international fulfillment organization works to enhance the life of those living in elder care communities such as nursing, assisted living, and hospice facilities by granting wishes. The organization grants relationship-based dreams, needs-based dreams, lifelong dreams, and “I don’t want to grow up” dreams, among others.

A Special Wish Foundation  This foundation grants wishes for infants, children, and young adults younger than 21 years old who have been diagnosed with an advanced illness. Wishes fall into three categories, including “a special gift,” “a special place,” or “a special hero.”

Starlight Foundation  This foundation provides entertainment, education and family activities for seriously ill children and their families. Starlight Wishes provide a dream-come-true experience to seriously ill or injured children ages 4 to 18.

Sunshine Foundation  This foundation is committed to fulfilling the dreams of children three to 18 years old who have advanced cancer or special needs and those who have faced abuse.

United Special Sportsman Alliance  This wish-granting organization specializes in providing children and adults with disabilities or advanced illness an outdoor adventure of their dreams. Trips include hunting, fishing, water sports, and other activities.

The Warrior’s Wish Foundation  This charity grants wishes for U.S. military veterans with advanced illness and their families. Gifts range from hearing aids and scooter chairs to family vacations and trips to attend reunions. The application requires a current photograph, a description of the wish, and an explanation of why it’s meaningful.

Wishing Star  This charity grants wishes to children with life-threatening illnesses who are between three and 21 years old and live in Eastern and Central Washington and Idaho. Children do not have to be terminally ill to qualify.

Wish Upon A Star  This  non profit, law enforcement effort is designed to grant the wishes of children ages 3-18 years old living in California who are afflicted with high-risk and life-threatening illnesses.

Wishing Well Foundation USA  This New Orleans-based organization is committed to granting wishes for children with advanced illness. Children younger than 18 years old are eligible to apply.

 

(Source:  Resources listed above were found on Cancer.netDuke Cancer CenterPatient Resource & Stupid Cancer)

 

Soy for Lung Cancer: 2 Tofu Recipes to Potentially Help Inhibit Malignant Growth

Soy

Meet GUEST BLOGGER Faith Franz.  Faith is a writer for The Mesothelioma Center, an organization that provides support and resources for people and families with this rare disease.  Faith also likes to spread the word about the benefits of alternative medicine.

Tofu –it’s what’s for dinner. (If you’re trying to naturally prevent lung cancer growth, that is.)

In a recent 2013 article, researchers from the University of Arkansas found that soybeans with a high oleic acid content could inhibit the growth of several cancers by up to 70 percent. Among the malignancies:

  • Lung cancer (growth reduced by 68%)*
  • Colon cancer (growth reduced  by 73%)*
  • Liver cancer (growth reduced by 70%)*

This was certainly not the first study to identify anti-cancer benefits in soy. Other studies exploring the correlation between soy and lung cancer date back to 1985, and one published this month indicates high-soy diets may correlate with longer cancer survival rates. (That study found that women who ate more than 21 grams of soy protein per day were more likely to reach five-year survival after a lung cancer diagnosis.)*

However, this study was the first note these specific bioactive benefits in three individual soy protein isolates. The University of Arkansas was also the first organization to identify two of the three high-oleic acid soybean varieties, as part of an ongoing soybean breeding program.

Oleic acid – the main fat component in the much-acclaimed olive oil – is also associated with breast cancer inhibition.

Lab workers tested each of the soy isolates against cell lines from lung, colon and liver cancer samples. They found that growth for each type of cancer significantly slowed after exposure to the soy isolates, and that higher doses produced greater results.

Several other food-derived compounds offer lung cancer inhibitory benefits. These include reservatrol, an antioxidant in red wine, and curcumin, the main component of the Indian herb turmeric.

Tofu, Two Ways

Tofu has a bad reputation as a bland, oddly textured food. But when prepared correctly, nothing can be further from the truth.

Just like you wouldn’t serve raw, unseasoned meat, you can’t serve raw, unseasoned tofu. It needs a zesty marinade and some added fat to taste its best.  It also needs to be pressed to remove excess water; without pressing, it’ll be soggy, no matter how long you cook it.

You’ll need to be sure to purchase tofu that’s certified organic or made from non-genetically modified soybeans. (The health effects of genetically modified foods are not completely known, but what we do know suggests that they’re not ideal for health). While the study uses soybeans that are bred to have higher-than-average oleic acid concentrations, there are several natural ways to breed non-modified high-oleic acid soybeans.

The following two soy-based recipes are full of plant-based protein (more than 15 grams per serving):

Crispy Baked Garlic Tofu (serves one)

Ingredients:

1/3 package organic tofu

1 whole egg

1/3 cup Panko breadcrumbs

1 tablespoon garlic paste

1 teaspoon onion powder

½ teaspoon cayenne pepper

½ teaspoon thyme

Salt and pepper, to taste

Directions:

-  Thinly slice tofu; press between paper towels for five minutes to remove moisture.

- Preheat oven to 400 degrees.

- In one bowl, whip together the egg and garlic paste. In another bowl, blend together the Panko, onion, cayenne, thyme, salt and pepper.

- Dip each tofu slice into the egg mixture, then roll in Panko coating. Arrange on a greased cookie sheet, then bake 10-13 minutes until crispy). Serve warm.

Easy Tofu Stir Fry (serves one)

Ingredients:

1/3 package organic tofu

1 floret fresh broccoli

½ cup sliced carrots

½ onion

1 can baby corn or water chestnuts

¼ cup organic soybean oil

Teriyaki sauce and soy sauce, to taste

1 serving brown rice or soba noodles

Directions:

-  Cut tofu into cubes; press between paper towels for five minutes to remove moisture.

-Cook rice/noodles according to package.

- Add vegetables, oil, teriyaki sauce and soy sauce to a wok (or skillet). Sautee for 5 minutes; add tofu cubes. Sautee another 4-6 minutes, flipping the cubes so each side gets firm and brown.

If desired, add another dash of teriyaki or soy; serve over the rice or soba noodles.

Do you cook with soy? If so, what are your favorite tofu or tempeh recipes? If you try out either of these recipes, let us know your thoughts in the comments.

 

*Sources:

Seaman, A. M. (26 March 2013). Soy tied to better lung cancer survival among women. Reuters. 

Rayaprolu, S. J., Hettiarachchy, N. S., Chen, P., Kannan, A., & Mauromostakos A. (2013). Peptides derived from high oleic acid soybean meal inhibit colon, liver and lung cancer cell growth. Food Research International; 50 (1).

MORE Books for Children & Families Living with Cancer

books

I am amazed how many books have been written to help families deal with a diagnosis of cancer.  Below is yet another post on helpful books written by Bonnie Coberly, Certified Health Counselor (CHC) at Natural Horizons Wellness Centers. Bonnie helps individuals to reach their wellness goals through smart and healthy dietary choices. You can follow Bonnie Coberly on Google+.  

 

It’s a well-known fact that if you have a book and a lap, most children will expect you to read them a story. While reading is usually said to be a calm and joyful experience, topics like cancer may not seem to follow that same thread.

Here are some suggestions of books for children and families living with cancer that prove to not only be helpful, but can also be entertaining and uplifting.

*Note: All of the following books can be found on Amazon.com.

Children’s Books:

The Boy of Steel: A Baseball Dream Come True by Ray Negron – “Young Michael Steel loves to watch the New York Yankees on TV—from his hospital bed. Michael has brain cancer. But when Yankee second baseman Robinson Cano visits Michael in the hospital, Michael embarks on an unexpected and wonderful journey when he becomes a Yankee batboy for a day. It’s his baseball dream come true!”

When Someone You Love Has Cancer: A Guide to Help Kids Cope by Alaric Lewis

Taking Cancer to School (Special Kids in School Series) by Kim Gosselin – A great book for cancer patients who are school-aged to take back to school with them or have their teacher read to their classmates. Provides learning for classmates and encourages empathy and understanding.

H is for Hair Fairy: An Alphabet of Encouragement and Insight for Kids (and Kids at Heart!) with Cancer by Kim Martin – “An alphabet book with a mission, this 32-page picture book will inspire, comfort, educate and encourage children being treated for cancer. Using colorful, warm, humorous illustrations and verse, the author employs the alphabet to feature different aspects of coping with cancer treatment.”

Imagine a Rainbow: A Child’s Guide for Soothing Pain by Brenda Miles – “Through a series of beautiful illustrations that engage all of the senses, each accompanied by a verse couplet, this book asks the child to imagine several things to cope with pain. Some are calming, some are delighting, some are empowering, some are inspirational.”

Mom Has Cancer! (Let’s Talk about It) by Jennifer Moore-Mallinos – “This sensitively written book encourages preschool-age and early-grades children to explore the possibilities of a parent with cancer.”

The Famous Hat by Kate Gaynor – “This book has been designed to help children with leukemia (or other forms of cancer) to prepare for treatment, namely chemotherapy, and a stay in hospital. Treatment for childhood cancer can be very difficult to cope with, especially for very young children. The lengthy stay in hospital, having to contend with drips, tubes and injections is difficult enough without the possibility of hair loss for children to face. However, this book helps children to see the experience of a child that they can easily relate to.”

For Parents:

When a Parent Has Cancer: A Guide to Caring for Your Children by Wendy S. Harpham – “When A Parent Has Cancer is a book for families written from the heart of experience. A mother, physician, and cancer survivor, Dr. Wendy Harpham offers clear, direct, and sympathetic advice for parents challenged with the task of raising normal, healthy children while they struggle with a potentially life–threatening disease.”

What Is Cancer Anyway?: Explaining Cancer to Children of All Ages by Karen Carney – “What IS Cancer, Anyway? Explaining Cancer to Children of All Ages is one of the books in the Barklay and Eve Children’s Book Series. This book provides basic information that is essential when someone in the family has cancer and does so in a calm, clear, reassuring manner that children and adults will appreciate.”

Cancer in the Family: Helping Children Cope with a Parent’s Illness by Sue Heiney, Joan Hermann, Katherine Bruss and Joy Fincannon – “Outlining valuable steps necessary to help children understand what happens when a parent has been diagnosed with cancer, this guide provides “hands-on-tools” to help those affected by cancer—as well as their loved ones—face many of the dilemmas that come with the disease.”

For Siblings:

What about Me?: When Brothers and Sisters Get Sick by Allan Peterkin – “A young girl attempts to cope with her brother’s being ill.”

Authored by Cancer Patients:

Chemo Girl: Saving the World One Treatment at a Time by Christina Richmond – “Chemo Girl is the fictional tale of a superhero created by Christina Richmond, who was diagnosed with Rhabdomyosarcoma, a rare type of muscle cancer, when she was in the seventh grade.”

I’m A Superhero by Daxton Wilde – “I’m A Superhero reaches beyond borders and cultures, helping children and their families to be brave, helping parents explain cancer to their young children, and helping families cope with one of life’s most difficult situations through love and humor.”

Do you have any cancer related books that you have found helpful for your family or children?  If so, please share them with us.  Knowledge is power…. let’s share the power!

 

Books Written For Children When an Adult Family Member Has Cancer

books

I recently came across a helpful list of books written to help children when an adult family member has cancer.  This list was compiled by the Children & Family Program team of The Gathering Place, a non-profit, community-based cancer support center that offers a wide variety of FREE programs for anyone touched by cancer living in Ohio.  

Below are a some of the books they suggest for families with younger children along with a brief description of each book.   Thank you The Gathering Place!

If you know of a fantastic book that was not listed below, please post the information below in the comments section or email me at Robyn@CancerHAWK.com.  Knowledge is power…. please share the power!

 

 

Our Mom Has Cancer, Abigail and Adrienne Ackerman, American Cancer Society, 800/227- 2345, $8.95. Written by two children whose mother is diagnosed with breast cancer. They discuss their reactions to surgery, chemotherapy, and radiation. The illustrations are simple children’s drawings, but capture the emotion of the ups and downs of treatment. This book is hopeful but honest, and is more focused on feelings associated with treatment rather than what treatments are and why they happen.

In Mommy’s Garden, Neyal Ammary, Canyon Beach Visual Communications, 2007, OOP*. A mother uses the idea of a garden to explain cancer to her daughter. Cancer is described as weeds. The mother discusses how chemicals and digging the weeds out can kill this plant. She also says that the chemicals used can affect the petals of the flowers. Terms like chemotherapy, operation, and hair loss are not used. This book would be ideal for a parent to read along with their child to explain the meaning of the metaphors. Strengths of this book include the illustrations of people being drawn with blank faces in order for the readers to decide how they think the individual is feeling. Because of the metaphor this book uses and the simple pictures and language, young school-age children would most benefit from being read the story.

The Dandelion Seed, Joseph Anthony, DAWN Publications, 1997, $7.95. This book is the story of a dandelion seed that fears letting go of the flower. When the wind blows it free the seed learns that the world can be scary, lonely, and beautiful. Once it reaches its new home, it blooms into the dandelion it was meant to be that then spreads its seeds. This book is a beautiful metaphor for those looking to know that in a journey that is scary and lonely a positive ending can await.

Lance Armstrong: The Race of His Life, Kristin Armstrong, Grosset & Dunlap, 2000, $3.99. Children experiencing cancer may want to know of others that have also experienced the disease, including celebrities. This hopeful Level 3 reading book gives the story of bicyclist Lance Armstrong and how he has overcome challenges throughout his life, including beating cancer.

The Paper Chain, Claire Blake, Eliza Blanchard & Kathy Parkinson, Health Press, 1998, (1- 800-643-2665), $8.95. An excellent book for young children, from late pre-school through school-age, which presents a standard range of events that occur when a mother has cancer. Surgery, hospitalization, chemotherapy and radiation are all discussed. Language level and illustrations are very good; the only disadvantage of this book is that it may present too much information for the younger children, especially since children may be exposed to material which may not be part of their family’s cancer experience

Good Luck, Mrs. K.! Louise Borden, Aladdin Paperbacks, 2002, $6.99. A story for mid-school- age children about a teacher with cancer, this book fills a gap in the literature. The illustrations and text are well done, and would be helpful to a child whose loved teacher had to leave school because of cancer. This book has a positive ending as the teacher does make a return the next year.

Can I Catch Cancer?, Brittany’s Books Publishing, 2007, $7.95. An attempt to teach the meanings of words such as cells, cancer, malignant, and chemotherapy, using colors, simple concepts, and cute language. This book is visually geared for very young children, but the text would be too difficult for these ages. Older children may be offended by the childishness of the art.

Grandma Kathy Has Cancer, Colleen Buckley, Dog Ear Publishing, 2007, $11.50. The real life situations presented in this book of a granddaughter and grandmother can help children to understand how cancer can physically affect someone while the individual herself does not change. With emphasis in how the grandchild and grandmother support each other throughout the ups and downs of cancer treatment, this simple and direct story is told through a child’s voice alongside cheerful, full-color illustrations.

What Is Cancer Anyway: Explaining Cancer to Children Of All Ages, Karen Carney, Dragonfly Publications, 1998, $7.95. A book in the Barklay and Eve series. Coloring book format, with lots of information on cancer, radiation and chemotherapy. Addresses cancer in a grandparent. Less focus on questions children might have, but emphasis on all cancers being different and the importance of asking questions. While, the text is appropriate for school-age children they might be offended by the childishness of the main characters being dogs.

When the Boys Ran the House, Joan Carris, Lippincott, 1982, OOP*. Tells the story of four young children who take on household responsibilities while their mother is sick and father is away. Cute, rather silly, for young to middle school-agers. It does address some of the issues children face when a parent is unable to fill normal roles.

Our Family Has Cancer, Too, Christine Clifford, Pfeifer-Hamilton Publishers, 1998, $6.95. Using cartoon characters, this book is for the 7-12 year old who is dealing with family cancer. The story presents a family in which the mom is diagnosed with cancer and her two sons learn about hospitalization, chemotherapy, radiation, and what changes there will be in their lives. There are good suggestions for adults to help children understand the material.

Someone I Really Love Has Cancer, Dana Cohn and L.E.Murray, self-published, copies available from 203/226-9165, 1999, OOP*. As one of the few books developed for younger children, this book has simple line drawings of animated figures and deals with the changes in a person from cancer and chemotherapy. Common questions that children have are also presented. The father is the person with cancer in this book. It is available in both Spanish and English.

My Mommy Has Breast Cancer, But She Is OK!, Kerri M. Conner, Xylophone Press, 2010. This book is about a girl named Maddie and her relationship with her mother as her mother gets treatment for breast cancer. It addresses her feelings towards her mother’s physical and emotional changes such as the way she spends times with her mother, shows her affection towards her, and the differences in her daily routine. These changes are addressed to Maddie by comparing her mother’s changes to that of a butterfly with constant confirmation that things are different and difficult but okay. The story is unique in that it features African-American characters and shows a return to normalcy in a mother one year after treatment.

Let My Colors Out, Courtney Filigenzi, American Cancer Society, 2009, $11.95. This board book tells the story of a young boy who uses color to express his many different emotions as his mother undergoes cancer treatment. As his feelings range from sad to happy to angry, the boy realizes that it’s okay to go through a range of feelings and that it is important to let them out. This book is ideal for children ages 2-5.

Tickles Tabitha’s Cancer-Tankerous Mommy, Amelia Frahm, Nutcracker Publishing Company, 2001, $9.95. A great, silly little book that handles young children’s emotional reactions to a parent with cancer very well. The only treatment mentioned is “medicine” and most of the book focuses on hair loss, changes in mother’s energy, and children’s struggles with family changes.

Just the Facts: Cancer, Oliver Gillie, Heinemann Library, 2004. This is a comprehensive and straight-forward guide to cancer that gives an overview of the disease through a description of what it is, its various forms, how people live with it, and treatment options. Personal stories from cancer survivors are throughout the book. Full color photographs accompany the text. Appropriate for older school-age children to teens.

The Valentine’s Day Gift, Allison Grace, Chagrin River Publishing, 2005. A first person account of a school-age girl’s experience with her mother’s breast cancer. It is a very positive upbeat story, but fairly specific to the experiences of this one child. She does talk about her feelings, and what helps her cope, and gives some information on cancer itself. The book is mostly text, with minimal illustrations.

You are Not Alone: Families Touched by Cancer, Eva Grayzel, self published, 2010. An easy to read book featuring a collection of stories from children all over the world who explain what they do to cope with cancer in parents, siblings, relatives, and themselves. In addition to giving suggestions of ways to help deal with feelings, this book may give a child comfort in feeling that they are not alone in having to adapt to the changes that are happening in their family because of cancer.

Becky and the Worry Cup, Wendy S. Harpham, Harper Collins Publishers, 1997. This highly recommended 48 page chapter book for ages 7-10 tells the story of a girl named Becky and how she and her family cope with her mother’s lymphoma diagnosis, chemotherapy and its side effects, cancer recurrence, radiation, and adjusting to their “new normal.” Highlights of this book include multiple examples of realistic situations that may cause a child to be worried, embarrassed, afraid or angry and the many different ways that a child can cope with them. In addition, the book also uniquely addresses why, even when a parent is in remission, it helps families to not forget about the cancer. The book ends with the positive message that although lemonade cannot always be made out of lemons, it is important to try and appreciate the positives in life. When a Parent Has Cancer: A Guide To Caring For Your Children is the parent accompaniment to this book that explains how to address many of the issues presented in Becky & the Worry Cup.

Nana, What’s Cancer?, Beverlye Hyman Fead and Tessa Mae Hamermesh, American Cancer Society, 2010, $14.95. This comprehensive book gives a thorough explanation of the medical and emotional aspects of cancer. Designed for school-age children, it is separated into chapters that focus on typical concerns of this age group including whether cancer can be caught, why some cancers are worse than others, whether anyone can get it, and what can be done to prevent cancer. The information given is designed to be both comforting and honest to the reader.

Sammy’s Mommy Has Cancer, Sherry Kohlenberg, Magination Press, 1993, $9.95. A simple story with nice illustrations about a mother with cancer. Appropriate for younger children, but does cover issues of surgery, chemotherapy, hair loss, and return to wellness.

When A Parent is Very Sick, Edna LeShan, Atlantic Monthly, 1986, OOP*. Written for older school-ager or young teen, this book identifies the many responses a child might have to a parent’s illness, hospitalization, or death. Special focus is given to living with a chronically ill parent and to mental health problems.

When Someone You Love Has Cancer: A Guide to Help Kids Cope, Alaric Lewis, Abbey Press, 2005, $7.95. A series of specific statements about the impact of cancer, with illustrations for each concept like “It’s O.K. to be mad,” “Talking helps,” and “Sometimes people don’t get better.” Each page can be read separately, and the illustrations are younger than the narrative. A good tool for parents who want to chose their own points of emphasis, although younger children would have a hard time skipping specific pages.

The Rainbow Feelings of Cancer: A Book for Children Who Have a Loved One with Cancer, Carrie and Chia Martin, Hohm Press, 2001. A ten year old girl tells about the many feelings that she has concerning her mother’s cancer. Her drawings accompany the text.

Someone I Love is Sick, Kathleen McCue, The Gathering Place Press, 2009, $21.95. This is a customizable book to use when talking with children ages 2-6 years old when a parent or grandparent has cancer. Pages can be selected to address the family’s specific situation including diagnosis, treatment, hospitalization, recurrence and, if need be, end of life. It can be used by both families and health care professionals to provide educational information and recognize emotional responses to cancer.

Butterfly Kisses and Wishes on Wings: When Someone You Love has Cancer . . . A Hopeful, Helpful Book for Kids, Ellen McVicker, self-published, 2006, $16.95. In this well- written story of a boy whose mother has cancer, a clear and honest explanation is given of the disease that is helpfully accompanied by drawings of cells. Surgery, radiation, and chemotherapy are each explained. The book discusses the emotions and questions a child may have and emphasizes what a child can do to help themselves and others when a loved one has cancer. This book also has its own website, butterflykissesbook.com, that has further resources to help a child cope.

Chemo Cat, Cathy Nilon, Ravenna Press, 2007, $9.95. A story about a cat family in which the mother is diagnosed and treated for breast cancer. The story’s simple language can provide a starting point to discuss chemotherapy, changes in physical appearance, and changes in the home. Common questions children ask are addressed as well as some of the emotions they may feel such as sadness, anger, jealousy, and embarrassment. The book ends on a positive note reflecting on the strengths of the family that have helped them cope with cancer.

The Hope Tree: Kids Talk About Breast Cancer, Laura Numeroff and Wendy Harpham, Simon & Schuster, 1999, OOP*. This book uses animal illustrations to familiarize children with some of the significant stress points when a mother has breast cancer. Issues such as reactions to diagnosis, understanding changes, family meetings, dealing with feelings, positive attitudes, etc., are addressed in this book through children’s personal stories. This book makes it easy to pick and choose information relevant to the situation of a family. NOTE: This same book is also published as Kids Talk by Samsung Telecommunications and Sprint PCS, 1999, OOP*. The content is identical.

When Bad Things Happen: A Guide to Help Kids Cope, Ted O’Neal, Abbey Press, 2003, $7.95. This book is a series of specific questions and concerns that children can have when bad things happen as well as suggestions for coping. Examples include “However you feel is okay,” “Why?,” and “Try to forgive.” Illustrations are younger than the narrative. God is mentioned throughout the book as a source of support. Each page can be read separately with the illustrations being younger than the narrative. This is a good tool for parents who want to choose their own points of emphasis, although younger children may have a hard time skipping specific pages.

My Mommy Has Cancer, Carolyn Parkinson, Park Press, 1991. A short book for younger children about a boy, Eric, whose mother has cancer. Cells in the body are described as bubbles, and cancer is presented as bad bubbles. Chemotherapy is explained. There is some focus on the sadness the entire family feels, although the books presents hope for the future.

Mommy’s In The Hospital Again, Carolyn Parkinson, Solace Publishing, 1994. Great illustrations of a young boy dealing with his mother’s cancer. The child is kindergarten age, but much of the language of this book is for somewhat older children. It does deal with a sudden hospitalization and the honest fears and reactions of a young child.

A New Hat for Mommy: Helping Children Express Their Concerns on Cancer, Hannah Grace Perry, BookSurge, 2005, $10.99. A story of a nine year old girl named Lucy as she experiences her mother having cancer treatment. It explains the meaning of cancer, as well as what happens during hospitalizations and surgery. Questions to ask children about what Lucy and her family are experiencing are included throughout the book. This book is a good resource to start a conversation with children about their feelings and to help them feel that they are not alone. As the book is written with a lot of text in a simple style that discusses both complex issues and Lucy’s talking toy cat, it would be ideal for a parent to read to a young child while summarizing its content. It may also be appreciated by older school-age children looking for explanations about cancer, its treatment, and the feelings associated with it.

Daddy Kat gets a Brain Tumor, Melinda Rector, Lulu.com, 2007, $18.20. This book is the story of a cat who shares her reactions to her father’s brain tumor. The story ends with the father going to hospice and dying from his cancer. Children may find the story difficult to follow. The story’s references to a cat’s multiple lives may not serve to give a clear explanation of death.

When Mommy Had a Mastectomy, Nancy Reuben Greenfield, Bartleby Press, 2005, $14.95. This well-written book addresses the special connection that a child can have with her mother’s breasts and the difficulty she can have in learning about the cancer and need for the breasts to be removed. It also follows the child’s role and feelings as her mother has the surgery and experiences the lengthy waiting period of recovery. This story is an excellent choice to prepare a child for a loved one’s mastectomy and open up conversation.

When Mama Wore A Hat, Eleanor Schick, Wyeth, 2007, *W. This is a well-written book about two children that have a mother with cancer. The book gives a great deal of attention to the topic of chemotherapy treatment and common concerns and emotions a child has when a parent has cancer. It ends on a positive note with the mother feeling better after her treatments have been completed. This is one of the few stories in which the parent is single.

When Mommy Is Sick, Ferne Sherkin-Langer, Albert Whitman and Company, 1995, OOP*. Although not specifically about cancer, this is a very good little book which addresses many of the concerns a child has when a mother is sick and is hospitalized. Great illustrations and language level for younger children, and could be safely used to address separation concerns and coping for children facing any type of parental illness.

Cancer & Kids, Rae Simons, AlphaHouse Publishing, 2009. This comprehensive book defines cancer, explains the different types, discusses its various causes and methods for diagnosis, and provides information on ways to protect oneself against cancer and help to find a cure. A real life story is also provided about a family experiencing childhood cancer.

The Year My Mother Was Bald, Ann Speltz, Magination Press, 2002 $9.95. Nicely written book for mid- or older-school age children when a mother has breast cancer. Quite specific to diagnosis, with lots of medical information. Does emphasize emotions, questions, and changes that occur for a child in this age group.

Max’s Daddy Goes to the Hospital, Danielle Steele, Delacorte Press, 1989. This book is the story of four year old Max and how he copes with his father’s hospitalization and injuries after he breaks his arm and leg while firefighting. Although this book does not focus on the topic of cancer, children may be able to relate to the emotions of Max and his mother when they find out his father is injured, Max’s feelings and questions about having to wait to visit his father in the hospital, the experience of Max first seeing his father injured and with an IV, and the wait for his father to recover.

Mom and the Polka-Dot Boo-Boo: A Gentle Story Explaining Breast Cancer to a Young Child, Eileen Sutherland, American Cancer Society, 2007. A very simple story that is ideal for young children in explaining breast cancer, “special medicine,” the feelings a parent might have, and return to wellness. Children’s drawings accompany the rhyming text.

Hair for Mama, Kelly A. Tinkham, The Penguin Group, 2007. This comforting and humorous book is about a boy whose mother has cancer. Because of her hair loss, she does not want to be in the family photo. Her son Marcus makes it his mission to find her hair so that she will be in the photo and wishfully, feel better. The story’s resolution of the boy talking to his mother about his feelings helps him to learn why hair loss occurs and address his underlying concerns for his mother. Full page watercolor pictures illustrate the story. It is one of the few picture books available that features an African-American family.

When Eric’s Mom Fought Cancer, Judith Vigna, Albert Whitman and Company, 1993, OOP*. The story of a young boy whose mother has breast cancer. Surgery and chemotherapy are addressed, and good examples of guilt and anger on the part of the child are provided. Daddy plays an important role in this book in supporting his son.

Where’s Mom’s Hair?: A Family’s Journey Through Cancer, Debbie Watters, Second Story Press, 2005, $12.95. This is a family’s story about a mother’s cancer, illustrated by actual photographs of the diagnosis, hair loss and chemotherapy. The text is simple and told from a child’s point of view, and the emphasis of this book is on hair loss and re-growth, with a sense of celebration for the end of treatment.

Mira’s Month, Deborah Weinstein-Stern, BMT Newsletter, 1994, (1-708-831-1913), OOP*. A simple story about a four-year old whose mother has cancer and has to be in the hospital for one month. Issues around missing mom, visiting the hospital and coping with separation are addressed, and there is a happy reunion in the end.

Promises, Elizabeth Winthrop, Clarion Books, 2000, $16.00. Good focus on emotions and reactions of a young child, especially anger and confusion. This book does not use the word “cancer,” but describes side effects of treatment, especially hair loss, and sudden hospital stays. Emphasis is on the disruption to a child’s life when mother is sick.

Once Upon A Hopeful Night, Risa Yaffe, Oncology Nursing Press, 1998, $7.00. This small book is the story of a mother’s cancer, told in poetic verse, with line-drawn illustrations which are fairly mature in their depiction of the experience of cancer. Good for school-age children.

Adult Survivors of Pediatric Cancer: Get the 411 on Late Effects of Cancer Treatments

 

Thanks to advances in early detection and better treatment regimens, survivors of childhood cancers often go on to live full and productive lives.  However, the same treatments that cure cancer can also put survivors at risk for future medical problems.  Such health problems, known as “late effects“, can occur months or years or even decades after successful treatment has ended.   

FACT:  In a large study of adult survivors of childhood cancer, researchers have found that more than 95% suffered from a chronic health condition by the age of 45, including pulmonary, hearing, cardiac and other problems related either to their cancer or the cancer treatment.

FACT:  The chances of having late effects increases over time so the older you get, the more likely you are to experience health problems.  Risk factors vary depending type of cancer originally treated, location & size of tumor(s), treatment regimens utilized as well as other patient-related factors.

FACT:  Survivors need proactive, clinical health screenings and ongoing, specialized follow up care. Regular follow-up by health professionals who are experts in finding and treating late effects is key.  The exams should be done by a health professional who is both familiar with the survivor’s risk for late effects and can recognize the early signs of late effects.

 

If you are an adult survivor of pediatric cancer, take a look at these RESOURCES that focus on late effects of cancer treatments:  

* Survivors Taking Action & Responsibility (STAR) program at the Lurie Comprehensive Cancer Center of Northwestern University is a comprehensive long-term follow-up program specifically created for adult survivors of pediatric cancer.   STAR is one of several programs in the country to offer this specialized service.  Here, annual check ups are tailored to each patient and may include a heart ultrasound, a battery of blood tests, a mammogram, a chest MRI, a session with a counselor as well as many other diagnostic tools.

I also LOVE their GET EMPOWERED: A video education series for childhood cancer patients and survivors.  Topics include the impact of childhood cancer on adult survivors, making the transition to adult health care, cardiac risk factors, fertility, finding a “new normal” and navigating the emotional side of survivorship.

*  Another great source of information is The Children’s Oncology Group’s Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers.  Talk to your doctor(s) about these guidelines.

 

*  Beyond The Cure has a very informative website that provides detailed information about the late effects of a cancer diagnosis and treatment involving all aspects of survivors’ lives. To help analyze late effects specific to your diagnosis and treatment, check out their Late Effects Assessment Tool.

*  My Heart Your Hands was created by 2 adult survivors of pediatric cancer.  Their mission is to not only raise awareness of the potential late effects of cancer treatments, but to also equip survivors with information and tools they need to manage their follow up care.  Check out their listing of Late Effects Clinics located throughout the US or listen to founder Stephanie Zimmerman’s story.

 

Remember, the more you know about the possible long-term effects, the better prepared you will be to meet any challenges the future may bring.

If you know of other survivorship resources that focus on late effects of cancer treatment, please post them below.  Knowledge is power.  Let’s share the power!  

 

(sources:  Natl Cancer Institute; The STAR Program; WSJ.com)