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Wish Fulfillment Organizations for People With Cancer

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Some wishes can come true.  Just ask anyone who has worked with one of the organizations listed below as they work to make wishes come true for people with cancer and other life-threatening illnesses.  Some work specifically to grant wishes of children; others with adults; and still others for families who have a parent battling cancer.  The various organizations have differing eligibility requirements and limitations regarding the types of wishes they grant.  Each organizaion is amazing in their own way.

Please note:  To find out more information on getting a wish granted, please contact each organization directly.  If you know of other organizations that offer wish fulfillment, please email me at robyn@cancerhawk.com and I’ll post their information.

 

3 Little Birds 4 Life  This nonprofit grants wishes to young adults with cancer ages 18-40.  Wishes that include travel are restricted within the continental United States.

Believe in Tomorrow Children’s Foundation  Best known for offering parents temporary housing near the hospitals where their children are being treated, this foundation also provides funding for various adventures for children with advanced diseases.

Children’s Wish Foundation International  This Atlanta-based nonprofit grants wishes to children with advanced illness, including advanced cancer, who are younger than 18 years old. Children who are “too young to make a wish that is truly their own” can participate in the organization’s Young Minds program, which provides children younger than three years old with an assortment of gifts to entertain and provide comfort.

The Clayton Dabney Foundation for Kids with Cancer  Through the Medicine of the Heart program, this foundation anonymously grants wishes to children with advanced cancer who come from financially needy families. A health care provider, such as a doctor or nurse, must nominate the child.

Compassion Partners  This Disney program provides children and adults free passes to several theme parks in Florida, including Disney theme parks, Sea World, Universal Studios Orlando, and Busch Gardens. Passes are available by calling 407-396-6065 or 407-828-2298.

Deliver the Dream  This organization provides families living with an advanced illness whether the illness involves a child or a parent the chance to relax, enjoy time together, and forge bonds with others during a three-day retreat. Health care providers or one of Deliver the Dream’s partnering organizations are responsible for recruiting the family for participation.

The Dream Factory  The Dream Factory grants wishes to critically and chronically ill children who are between three and 18 years old. Parents, guardians, physicians, other caregivers, and children with advanced diseases can make referrals to begin the wish-granting process.

Dream Foundation  The Dream Foundation fulfills the wishes of adults suffering from advanced illnesses. The foundation seeks to help adults find peace and closure with the realization of a final wish. Dream Foundation grants requests to adults older than 18 years old whose life expectancy, confirmed by their physicians, is one year or less. They must also confirm that they have limited resources.

Give Kids the World  The Give Kids the World Village is a 70-acre resort in Central Florida that offers accommodation, entertainment, and other attractions for children with life-threatening illnesses. The charity provides children between the ages of three and 18 and their families free, one-week vacations to help create long-lasting memories. A child must be sponsored by one of more than 250 wish-granting organizations in the country or a children’s hospital affiliated with Give Kids the World.

Granted Wish Foundation  The Granted Wish Foundation fulfills wishes for “disabled, disadvantaged, and deserving individuals and families” and works with people of all ages. In addition, the foundation has a special program that provides luxury air transportation for children with advanced illness and their families to travel to receive life-saving treatment.

Hope Kids  This charity hosts regular events and activities (a “never-ending” wish) that help restore hope for the future. Hope Kids also provides a support community for children with advanced illnesses and their families.

The Jack & Jill Late Stage Cancer Foundation The J&J Late Stage Cancer Foundation is a national resource providing WOW! experiences for children and families who have a Mom or Dad with late stage, limited life expectancy cancer.

Jason’s Dream for Kids  Jason’s Dreams for Kids grants wishes to children diagnosed with a progressive, degenerative, or malignant condition. The organization relies on medical professionals and parents for referrals and determines medical eligibility with the help of the treating physician.

Kids Wish Network  The Kids Wish Network grants wishes for children who are between three and18 years old. The organization’s “Our Hero” program also provides wishes for children who have overcome life-altering circumstances and endured great pain and suffering. Anyone can refer a child, including a family member, friend, nurse, doctor, or social worker.

Make-a-Wish Foundation  The nation’s largest wish-granting organization, Make-a-Wish fulfills the wishes of children between two and a half and 18 years old with life-threatening medical conditions, aiming to “enrich the human experience with hope, strength, and joy.” The organization accepts referrals from health care professionals and parents, and children can even nominate themselves. After evaluating medical eligibility, a team of volunteers meets with the child to help identify the child’s “true wish.”

Making Memories Breast Cancer Foundation  Making Memories grants wishes for patients with metastatic breast cancer, while raising awareness about the disease. People with advanced breast cancer or their friends and family members can submit wish requests.

The Marty Lyons Foundation Founded by professional football player Marty Lyons after serving as a surrogate father of a three-year-old boy with a life-threatening illness, the foundation helps grant wishes for children with advanced illnesses.

Memories of Love  This organization provides children who have parents with advanced illness with a chance to form long-lasting memories by going on vacation with their entire family. Families are sent on a five-day, all-expense-paid vacation to Orlando, Florida. A physician, health care provider, or care organization must identify and nominate a parent who has an advanced illness.

Never Too Late  This organization helps make wishes and dreams come true for people age 65 and older with advanced illness, aiming to honor the lives they have lived. The organization requests some financial support from family members to fulfill wish requests.

Nicki Leach Foundation  This foundation provides financial assistance to teenagers and adults between 16 and 25 years old who have advanced cancer. The foundation’s clients often use this assistance to pay for specific needs or activities that they may not be able to afford, such as clothing, college, a cell phone, or bills. The applicant’s oncologist must confirm diagnosis.

Operation Liftoff  Operation Liftoff provides children with advanced illness three types of trips: “dream trips” for children and their families, “care trips” for medical treatment in other regions, and “group trips” to help teenagers with advanced illnesses leave the hospital and bond with peers. Parents and caregivers complete a form to request a trip.

The Rainbow Connection  This organization helps grant wishes to children from Michigan facing an advanced illness. To qualify, children must be between two and a half and 18 years old, live in Michigan, be diagnosed with an advanced illness, and have the diagnosis verified by a physician. In addition, they must not have received a wish fulfillment from any other organization. Medical professionals, parents or guardians, and children may submit wish requests.

Second Wind Dreams  This international fulfillment organization works to enhance the life of those living in elder care communities such as nursing, assisted living, and hospice facilities by granting wishes. The organization grants relationship-based dreams, needs-based dreams, lifelong dreams, and “I don’t want to grow up” dreams, among others.

A Special Wish Foundation  This foundation grants wishes for infants, children, and young adults younger than 21 years old who have been diagnosed with an advanced illness. Wishes fall into three categories, including “a special gift,” “a special place,” or “a special hero.”

Starlight Foundation  This foundation provides entertainment, education and family activities for seriously ill children and their families. Starlight Wishes provide a dream-come-true experience to seriously ill or injured children ages 4 to 18.

Sunshine Foundation  This foundation is committed to fulfilling the dreams of children three to 18 years old who have advanced cancer or special needs and those who have faced abuse.

United Special Sportsman Alliance  This wish-granting organization specializes in providing children and adults with disabilities or advanced illness an outdoor adventure of their dreams. Trips include hunting, fishing, water sports, and other activities.

The Warrior’s Wish Foundation  This charity grants wishes for U.S. military veterans with advanced illness and their families. Gifts range from hearing aids and scooter chairs to family vacations and trips to attend reunions. The application requires a current photograph, a description of the wish, and an explanation of why it’s meaningful.

Wishing Star  This charity grants wishes to children with life-threatening illnesses who are between three and 21 years old and live in Eastern and Central Washington and Idaho. Children do not have to be terminally ill to qualify.

Wish Upon A Star  This  non profit, law enforcement effort is designed to grant the wishes of children ages 3-18 years old living in California who are afflicted with high-risk and life-threatening illnesses.

Wishing Well Foundation USA  This New Orleans-based organization is committed to granting wishes for children with advanced illness. Children younger than 18 years old are eligible to apply.

 

(Source:  Resources listed above were found on Cancer.netDuke Cancer CenterPatient Resource & Stupid Cancer)

 

If You’ve Been Touched By Breast Cancer & Are Planning A Wedding, Read On…

Image credit:  123RF Stock Photo

Image credit: 123RF Stock Photo

 

It’s that time of year again when The Wedding Pink presents one couple whose lives have been recently touched by breast cancer with a FREE dream wedding, valued between $30,000- $40,000.  OMG! So amazing!!

 

Founder Cheryl Ungar is a 22-year breast cancer survivor and a wedding photographer.  She has put together an extraordinary team of some of Colorado’s top wedding vendors — all of whom have generously agreed to donate their services and products to ensure The Wedding Pink is a spectacular event for one very special couple.

 

Here’s the dealio (as my daughter always says)…  If your life has been recently touched by breast cancer (fyi, the experience is not limited to the bride, but could be with the bride or groom’s extended family) AND are engaged or soon-to-be-engaged, you could be the lucky winner of this fairy tale wedding.

 

This year’s Wedding Pink will will take place May 15, 2014 in Larkspur, Colorado.  Applications are open to ANY legal resident of the US regardless of what state they live in.  Submissions will be open from August 15 – August 25.  The winning couple will be selected in early September 2013.  There are no income qualifications.  Winners will be chosen by a panel of judges.  To learn more about the submission criteria, click HERE.

Wishing you all a lifetime of health, love & happiness together….

Navigating A Diagnosis of Mesothelioma

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This post was written by guest blogger Tim Povtak.  Tim is a former newspaper reporter  who has been writing for The Mesothelioma Center since 2011.  The Mesothelioma Center provides incredible support and resources for people and families who need help understanding and coping with this disease.

Knowledge is key when it comes to battling malignant mesothelioma cancer. The more you know, the better you will feel about the fight. Not only is it tough to pronounce, it’s even tougher to understand all the intricacies involved.

Getting skilled help is crucial. It’s just not easy to do.

To help someone first diagnosed with mesothelioma, it’s vital to find the right resources – doctors and other medical professionals who see it regularly —  and a support group that is traveling the same route.

There is no replacement for experience.

Mesothelioma is a rare cancer – only 3,000 cases are diagnosed annually in the United States — caused almost exclusively by an exposure to asbestos, the naturally occurring mineral that was used extensively through much of the 20th century.

Reliable information can be difficult to find. Although there is no cure, recent curative advancements have been made. Novel therapies are being developed today. Alternative, supplemental remedies can help, too.

Selecting the right specialist might be the most important decision a patient will face. That’s where help, and support, is needed.

A typical diagnosis of mesothelioma may sound like a death sentence – six to 18 months was the norm not long ago – but many patients are surviving longer, and some even thriving, with the right help.

Rule No. 1: Don’t Do It Alone

As a caregiver, or just good friend, it’s important to learn about the disease. There is an easy-to-read encyclopedia of resources available at Asbestos.com.

The Mesothelioma Center helps patients and caregivers find the best doctors and the most appropriate cancer centers with the latest and greatest, most technologically advanced equipment. This is not the time to take short cuts.

At Asbestos.com, there are Patient Advocates who can advise patients and caregivers on where to turn, what to do next and how to connect with medical professionals. There is a registered nurse on staff to answer questions. There is a Veterans Department with counselors to answer questions that might be exclusive to veterans, helping navigate through the often-frustrating VA Health Care System.

Rule No. 2: Find a Support Group

There is a support group at Asbestos.com that meets the second Wednesday of each month at 8 p.m. EST. You can join in online or by phone. It’s moderated by a licensed mental health counselor and open to mesothelioma patients, families and caregivers who can ask questions, discuss concerns and chat on various topics.

There also is a Mesothelioma Facebook page, where ideas are exchanged and support is received. Also, check out the Wall of Hope, a section on mesothelioma survivors who have beaten the odds because they refused to concede to this terrible cancer.

Rule No. 3: Stay Positive

There is hope, so don’t believe all the gloom and doom. Explore the world of clinical trials. Mesothelioma treatment is changing. Gene therapy, immunotherapy, photodynamic therapy are the future, but they aren’t yet part of the traditional approach. They are available, though, through various clinical trials. Go to the National Cancer Institute website to see what is being offered.

Something could work. There is no universal therapy that works for everyone, but people respond differently to different treatments. Finding the right one sometimes takes the help of a friend.

10 Reasons Why I’m a Fan of The Cancer Treatment Centers of America

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For years I’ve seen television commercials for The Cancer Treatment Centers of America (CTCA)But are they really as good as they appear to be?  I’ve visited their Arizona facility twice and I have to say, I think they might be that good. If nothing else, I’m impressed with the way they attack cancer (and I don’t get impressed easily ;-))…

 

Below are 10 reasons (listed in no particular order) of why I’m a huge fan:

1.  Practice personalized medicine.  CTCA treats each cancer as unique and tailor a treatment protocol to match each person’s unique needs and diagnosis.  CTCA will run genetic and biomarker testing on tumors.  They will even prescribe off-label drug treatments (drugs that are not part of the standard protocol) if the standard of care is not doing the job. They also take a proactive approach to treating side effects caused by cancer treatments.

 

2.  Integrative team approach.  Every patient at CTCA gets a team of at least 5 professionals assigned to care for them including a medical oncologist, clinic nurse, registered dietitian, naturopathic clinician and nurse care manager.  Of course, surgical specialists, radiation oncologists, gastroenterologists, etc. will also become part of the team if their areas of expertise are required.  And get this, they all talk to each other and create a joint plan of action together.  They work together to treat the entire person before treatment begins, during treatment and even after treatment ends.   CTCA also employs licensed acupuncturists and massage therapists to help patients manage the side effects of treatment.

 

3.  100% focused on cancer.  Need I say more?! BTW, approximately 65% of the people being treated at CTCA have advanced or complex cancers. They are used to tough cases.  And they don’t give up.

 

4.  Make having cancer a little less stressful.  Schlepping from one doctor to the next; coordinating care and communications between different doctors and different hospitals; tracking down records, getting prescriptions, battling with insurance, etc. is downright exhausting.  At CTCA, they do all this for you.  You show up to your appointment and your team of doctors come to you.  

 

5.  Latest & greatest equipment.  CTCA offers cutting edge, treatment options and state-of-the-art technology like Cyberknife, TomoTherapy®, Cord Blood Transplants, Calypso® 4D Localization System™/GPS for the Body®, Tuning Fork, genetic & molecular profiling & much more.

 

6.  Nutritious & delicious food.  If you’ve ever eaten hospital food, you know how much it sucks.  Sorry, but it does.  The food they serve at their facilities is A-M-A-Z-I-N-G.  It’s all freshly prepared, made from organic ingredients whenever possible and inexpensive (I swear).   Each facility has it’s own smoothie bar and serves Starbucks coffee (seriously).  The Arizona facility even has it’s own organic farm.

 

7.  Works with many insurance companies.  CTCA works with many different insurances (typically not medicare or medicaid though).  All costs are pre-determined so there will be no surprise charges.  Acupuncture, reiki, chiropractic and other mind-body work are included, even if these services are not covered by your insurance carrier.

 

9.  Incredible amenities.  On-site pharmacy; on-site boutique specializing in wigs, head shavings, head coverings & mastectomy products- all sold at 30% below retail; on-the-premises spa; 24X7 visiting hours; really nice private hospital rooms that are ICU-capable with nearby subsidized hotel rooms for approximately $40 a night; massage & pampering for caregivers; only green products are used to clean the center; all medical records & results are 100% digital; really nice infusion bays; pet therapy dogs, free laundry services; the list goes on and on.  They even throw parties to celebrate different milestones throughout this journey.

 

10.  Survivorship programs.  Once active treatment is complete, CTCA Survivorship Program lends support to survivors as they get back into the swing of things.

 

THE BOTTOMLINE:  CTCA treats every patient as a person, not a number.  They take personalized cancer care to a new level…  They offer realistic hope to their patients.  I wish we had looked into receiving treatment there for Alan.

Camps for Kids & Families Touched by Cancer

 

Attending one of the many camps created specifically for anyone touched by cancer can be a wonderful way to connect with others who share similar experiences.  While some camps are just for children (or young adults) who have been diagnosed with cancer or have survived a diagnosis of cancer; others are for their siblings; and still others are designed for the entire family to attend.  There are even camps for children who have lost a parent or sibling to cancer.  Creating new friendships, sharing adventures, mastering new skills or simply taking a break from cancer are a few of many benefits these camps can offer.

To find a camp that fits your specific needs, check out these incredible resources that list many different cancer camps.  Most camps have oncology doctors and nurses on staff to  provide medical care to campers when necessary.  Additionally, many of these camps are offered FREE of charge to participants.

Ped-Onc Resource Center which lists camps by state coupled with a short description of each camp.

Cancer.Net also provides a listing of different camp and retreat options for kids and families touched by cancer.

Allen’s Guide offers a listing a camps that specialize in oncology.

Also talk to your oncology nurse or social worker.  They may be able to suggest additional camps and/or retreats that may be beneficial for you.

If you’ve been to a camp that you loved, please comment below.  Knowledge is power… let’s share the power...

“How We Survived Cancer” – 7 Insights from Cancer Insiders

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This post was written by guest blogger Greg Pierce.  Greg is a 3x cancer survivor, American Cancer Society Hero of Hope speaker and Social Media Community Manager for WhatNext.com.   WhatNext.com is a fantastic support site where anyone touched by cancer can connect with others on a similar path.  WhatNext.com makes it easy to share and gain knowledge from each other’s experiences as well as connect with American Cancer Society resources.  Greg can be reached at greg@whatnext.com.

If you’ve just been diagnosed with cancer then you may feel shock, anger, sadness, denial, or confusion. Your loved ones are rallying around you, telling you to “fight!” It may help to have some suggestions from cancer survivors on just how to begin this fight. Below are seven ways that you can fight cancer inspired by cancer survivors themselves.

1. Relationship with Doctors and Medical Team

The relationship you will have with your doctor and medical team will be very intimate during treatment. Survivors that established relationships of trust with their team said that it was one of the main things that helped them survive cancer. From a medical perspective it is important, but it is often equally as important for your mental and emotional health.

2. Relationship with Caregiver

There may be a lot of strain put on your relationship with your caregiver during cancer and treatment. Often there is a mutual understanding of trust, respect, and gratitude, but sometimes it is easy to get frustrated or exhausted and take your stress out on one another. Survivors that have maintained a loving relationship with their caregiver (whether is a spouse, sibling, parent, or friend) have said that their caregiver was not only their main source of support but their number one cheerleader.

3. Family and Friends

A lot of survivors leaned on family and friends to help them survive cancer. Loved ones can be helpful during treatment from preparing meals, giving you rides, helping you around the house, taking your mind off things, going to appointments with you, distracting you from treatment, and acting as close confidants when you feel down. Survivors that have identified these steadfast loved ones in their lives have attributed a lot of their survival to those people.

4. Health and Nutrition

Some cancer survivors say that physical health and nutrition is not only a way to feel stronger during treatment, but it is also a concrete way to help yourself feel happier and more positive. Basic ways that survivors have tried to maintain their health include maintaining an exercise routine that it is approved by their doctor such as walking, stretching, swimming, and gentle yoga, working to get the nutrition they need by consulting their medical team about what foods are right for them, and sitting back and resting when their body was telling them to slow down.

5. Practical & Personal Methods of Coping

For you, surviving cancer may simply include finding your own personal or practical ways to get through days and treatment. Practical tips that have helped survivors include taking a notebook to doctor appointments to write down information they want to remember, keeping all insurance and medical related documents in a common folder, and packing a “chemo” bag for treatment. Personal ways may include taking up a new hobby, listening to soothing music during treatment, or it may be a new mindset to think positively or gain new perspective.

6. Support System

A support system can come in different forms. A common form is the people that are already around you; however, branching off from that direct source, there are local support groups, counselors, and online social networks. Not every form is right for everyone. Survivors say that they had to find the form of support that was right for them.

7. Help from the Community

A common regret that survivors share is that they did not accept the help that was offered them. It is possible that unexpected people will band together when they find out you have cancer. Survivors say that you should let them help you. It may be overwhelming or even feel intrusive in the beginning, but by letting these people help you, you will empower them in contributing to your fight. Help from the community may be from your church, work place, school, or other organizations that raise money and awareness for cancer.

These insights from inside survivors on your relationship with your medical team, caregiver, family and friends, support group, community, and your personal and physical ways of coping may help you to personally survive cancer, but ultimately you must find the best ways for you. Try stepping out of your shell this week and letting these avenues of support fall into place. What things do you think are going to help you the most? What things do you see that are already helping you fight cancer?

FREE Kit to Help Manage Side Effects from Chemotherapy

A sample of an Adult Comfort Kit

A sample of an Adult Comfort Kit

We all need a little love once in a while… and if you’ve been diagnosed with cancer and are receiving chemotherapy, you deserve a little extra lovin’. That’s what Peppermint & Ginger Comfort Kits are all about…

 

Peppermint & Ginger Comfort Kits are FREE kits created to help provide comfort and help alleviate some of the more common side effects caused by chemotherapy.  An “Adult Kit” contains peppermint and ginger teas (which can help ease nausea), a soft bristle toothbrush, alcohol free mouth wash and toothpaste and lip balm (to help ease oral side effects experienced as a result of treatment), warm socks and a relaxation CD.  When possible, P&G adds in other goodies as well.  Their “Pediatric Kit” contains hot chocolate instead of teas and it’s contents will vary depending on the age of the patient.

 

If you know of a cancer patient receiving chemotherapy or if you yourself are a patient and would like one of these comforting kits, please click HERE to request one.

FREE Discount Drug Card…. Clip & Save


Brain Tumor Clinical Trial Registries from All Over the World

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The International Brain Tumor Alliance (IBTA) has created a list of brain tumor clinical trial registries available online.  Although some of these resources are specific to brain tumors, others are not.  I am reposting this information as this listing is one of the most comprehensive that I have seen.  Thank you IBTA!  BTW, if you know of a clinical trial registry that is not listed below, please email Chris at christse@internet.co.nz.   I just emailed them about an Immunotherapy Clinical Trial Finder I know of.  Knowledge is power…. we gotta share the power….

International Clinical Trials:

ClinicalTrials.gov   

ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details.

 

WHO International Clinical Trials Registry Platform (ICTRP)

The World Health Organization Clinical Trials Search Portal provides access to a central database containing the trial registration data sets provided by multiple registries from around the world. It also provides links to the full original records.

 

Current Controlled Trials Ltd

Current Controlled Trials Ltd is part of Springer Science+Business Media. In response to the growing body of opinion in favour of prospective registration of controlled trials, the Current Controlled Trials website was launched in 1998, aiming to increase the availability, and promote the exchange of, information about ongoing randomised, controlled trials worldwide.

 

IFPMA Clinical Trials Portal

The International Federation of Pharmaceutical Manufacturers & Associations (IFPMA) Clinical Trials Portal aims to ensure:

A free and easy-to-use interface for patients and health professionals alike to ongoing clinical trialsclinical trial results and complementary information on related issues; Non-promotional and reliable information; Industry’s commitment to the transparency of clinical trials.

 

Africa:

Pan African Clinical Trials Registry

The Pan African Clinical Trials Registry (PACTR) is a regional register of clinical trials conducted in Africa. The registry is an African initiative serving the needs of Africans. It provides a searchable, electronic database of planned trials and trials currently in progress.

 

South African National Clinical Trial Register

The South African National Clinical Trial Register provides the public with updated information on clinical trials being conducted in South Africa.

 

Asia:

Chinese Clinical Trial Registry (in Chinese and English)

The Chinese Clinical Trial Registry (ChiCTR) was established by the Chinese Ministry of Health as a national clinical trials register to join the WHO International Clinical Trial Registry Platform (ICTRP).

 

National Clinical Research Coordination Center (in Korean and English)

Information on clinical trials being conducted in Korea.

 

The Clinical Trials Registry – India

The Clinical Trials Registry – India (CTRI) is an online register of clinical trials being conducted in India. The CTRI was set up by the ICMR’s National Institute of Medical Studies (NIMS) and funded by the Department of Science and Technology (DST) through the Indian Council of Medical Research (ICMR).

 

Japanese Clinical Trial Registry (in Japanese)

This portal is intended to provide information on clinical trials registered in three major Japanese centers: University Medical Hospital Information Network (UMIN); Japan Pharmaceutical Information Center (JAPIC); and the Japan Medical Association Center for Clinical Trials .

 

Sri Lanka Clinical Trials Registry

The Sri Lanka Medical Association (SLMA) has taken the initiative to establish the Sri Lanka Clinical Trials Registry (SLCTR), which will provide a facility for registration of trials conducted in Sri Lanka or overseas, and for collaborative research between Sri Lankan and foreign researchers.

Australia and New Zealand:

Australian Cancer Trials

This is a free information service that displays the latest clinical trials in cancer care, including trials that are currently recruiting new patients. The website is updated each day with new information from the Australian New Zealand Clinical Trials Registry andClinicalTrials.gov from the United States.

 

Australian New Zealand Clinical Trials Registry

The Australian New Zealand Clinical Trials Registry (ANZCTR) is an online registry of clinical trials being registered in Australia, New Zealand and elsewhere.

 

Cancer Trials Australia

Cancer Trials Australia (CTA) is a clinical trial network spread across multiple sites. CTA provides a fully comprehensive oncology clinical trials service that includes the conduct of single or multisite clinical trials, ethics submissions, research governance, clinical development advisory and laboratory assay services.

 

Victorian Cancer Trials Link

The Victorian Cancer Trials Link (VCTL) is a searchable database of all cancer clinical trials being conducted in Victoria.

 

Cancer Trials New Zealand

The overarching objective of Cancer Trials New Zealand (CTNZ) is to contribute to the New Zealand Cancer Control Strategy commitment to improve cancer control through research and clinical trials.

Europe:

EU Clinical Trials Register

The EU Clinical Trials Register website allows you to search for information on clinical trials in European Union (EU) member states and the European Economic Area (EEA) and clinical trials which are conducted outside the EU/EEA if they form part of a paediatric investigation plan (PIP). The website is hosted by the European Medicines Agency (EMA).

 

EORTC Brain Tumour Group

The EORTC Brain Tumour Group is a multidisciplinary and international group of neurosurgeons, neurologists, medical oncologists, radiation oncologists and basic scientists, and aims to conduct, develop, coordinate and stimulate research on the treatment of primary and secondary brain tumours.

 

Internet Portal of the German Clinical Trials Register (DRKS)

The DRKS is an open access online register for clinical trials conducted in Germany, which allows all users to search, register and share information on clinical trials.

Nederlands Trial Register (in Dutch)

Het NTR is een openbaar toegankelijk en vrij te doorzoeken prospectief trialregister, waarin studies staan geregistreerd die lopen in Nederland of worden uitgevoerd door Nederlandse onderzoekers.

 

Karolinska Clinical Trials Registry

The Karolinska Clinical Trials Registry is a Swedish online register of clinical trials being undertaken at the Karolinska University Hospital and other hospitals in Stockholm county.

 

United Kingdom:

Cancer Research UK

Cancer Research UK maintains a database of cancer trials written for patients, their families and friends. They aim to list all trials recruiting cancer patients in the UK.

 

UK Clinical Research Network Portfolio Database

The National Cancer Research Network (NCRN) maintains a searchable database of eligible clinical studies, known as the NIHR CRN CC Clinical Research Portfolio, which comprises the National Institute for Health Research (NIHR) Portfolio in England, and the corresponding portfolios of Northern Ireland, Scotland and Wales.

 

United States:

CCR Clinical Trials at NIH

The Center for Cancer Research (CCR), NCI’s largest division doing research on campus, conducts brain tumor clinical trials at the NIH Clinical Center in Bethesda, MD.

 

Coalition of Cancer Cooperative Groups

The Coalition of Cancer Cooperative Groups is a nonprofit organization whose mission is to improve the quality of life and survival of cancer patients by increasing participation in cancer clinical trials.

 

EmergingMed

Since December 2000, EmergingMed has guided more than 170,000 patients through a search for cancer clinical trials.

 

Pediatric Brain Tumor Consortium (PBTC)

PBTC’s mission is to contribute rapidly and effectively to the understanding and cure of these tumors through the conduct of multi-center, multidisciplinary, innovative studies with design and analyses based on uniformly high quality statistical science.

 

Radiation Therapy Oncology Group

For 40 years the Radiation Oncology Group (RTOG) has been a recognised leader in working to increase survival and improve the quality of life for cancer patients. Based in Philadelphia, RTOG is a key clinical research component of the American College of Radiology (ACR) and serves as a multi-institutional, international clinical cooperative group funded primarily by the National Cancer Institute.

 

TrialCheck

Used by the American Cancer Society, TrialCheck is a clinical trial database of all federal (U.S.) registered cancer studies and will identify a trial that fits your needs – completely unbiased. Please note, the search facility requires a U.S. zip code.

 

VirtualTrials.com

The Virtual Trials website is one of the most comprehensive sources of information and support for brain tumour patients available online. The website contains a search facility for clinical trials and noteworthy treatments for brain tumours.

 

The Preston Robert Tisch Brain Tumor Center at Duke University Medical Center

The Preston Robert Tisch Brain Tumor Center website has a list of all the brain tumor clinical trials available at their Center.

 

Cedars-Sinai Medical Center

Cedars-Sinai has one of the largest state-of-the-art clinical research facilities of any private hospital in the US.

 

The CERN Foundation

The CERN Foundation (Collaborative Ependymoma Research Network)  is comprised of a dedicated group of scientists and adult and pediatric neuro-oncologists working to find new treatments for ependymomas. Clinical trials are an integral part of the CERN Foundation’s many projects and collaboration.

 

City of Hope Clinical Trials On-Line

City of Hope is recognized worldwide for its compassionate patient care, innovative science and translational research, which rapidly turns laboratory breakthroughs into promising, new therapies. It is one of only 40 National Cancer Institute-designated Comprehensive Cancer Centers nationwide and a founding member of the National Comprehensive Cancer Network.

 

University of Pittsburgh Cancer Institute (UPCI)

Summaries of clinical trials ongoing at the Univeristy of Pittsburgh Cancer Institute are available on the Clinical Trials section of their website.

Corporate:

 

Amgen Trials

AmgenTrials.com is dedicated to bringing information about Amgen’s clinical trials to patients and healthcare communities.

 

Antisense Pharma GmbH

Information on clinical trials run by Antisense Pharma, including the phase III SAPPHIRE study on Trabedersen (AP 12009).

 

AstraZeneca Clinical Trials

This website provides clinical trial data, results and other information from or regarding AstraZeneca-sponsored clinical trials.

 

Boehringer Ingelheim International GmbH

Comprehensive information on new and ongoing confirmatory clinical trials sponsored by Boehringer Ingelheim are provided atClinicalTrials.gov. Results of Boehringer Ingelheim-sponsored trials can be found on their Trial Results website.

 

Bristol-Myers Squibb Clinical Trials Registry

This website lists clinical trials for which Bristol-Myers Squibb has full disclosure responsibility.

 

Celldex Therapeutics

Celldex has four programs currently under clinical evaluation for the therapy of cancer, including CDX-110 for glioblastoma multiforme (GBM).

 

Eli Lilly and Company Clinical Trial Registry

This site contains information and links about clinical studies sponsored by Eli Lilly and Company.

 

Glaxo Smith Klein Clinical Study Register

This register provides summary protocol information for GSK sponsored clinical studies.

 

Merck & Co. Inc.

Merck (operating as MSD outside the U.S. and Canada) register all of their trials on ClinicalTrials.gov. Information about ongoing clinical trials is also available through the IFPMA Clinical Trials Portal.

 

The Merck Group

Merck KGaA and its division for innovative small molecules and biopharmaceuticals, Merck Serono (operating in the US and Canada as EMD Serono ) carry out a series of clinical trials, all of which are registered on clinicaltrials.gov.

 

Novartis

The Novartis clinical trials website (for U.S. residents only) is designed to inform the public about important medical research studies as well as to educate patients and caregivers about the clinical trial process. For clinical trials outside the U.S. all Novartis clinical trials are registered on ClinicalTrials.gov.

 

NovocureTrial.com

This site contains information on clinical trials involving the NovoTTF device from Novocure Ltd.

 

Peregrine Pharmaceuticals Inc.

Peregrine Pharmaceuticals is a clinical-stage biopharmaceutical company developing first-in-class monoclonal antibodies for the treatment of cancer and viral infections.

 

Roche Clinical Trial Protocol Registry and Results Database

The Roche clinical trials database contains information about clinical trials sponsored by the Roche Pharmaceuticals Division and the Roche Diagnostics Division. The website is hosted by a third party, CenterWatch, to ensure impartiality.

 

Tocagen Inc.

News and updates on clinical trials run by Tocagen Inc., which is developing an innovative therapeutic approach to the treatment of glioblastoma multiforme (GBM).

 

Disclaimer: Please refer to IBTS’s disclaimer regarding the information provided on their website.

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